okay my luvlies a while we sup our ... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,469 members66,515 posts

okay my luvlies a while we sup our coffee and tea tell me how we build a strategy to beat our fibro thats the game

Ginsing profile image
51 Replies

Ken we need a hand please join in have a coffee and a bun :) Now beat the fibro well

1. Let sit in the sun we haven't managed that for such a long time. I think the rays keep it a are just by bay!

2. Exercise we are just by sitting here having a giggle and passing the buns

3.

Written by
Ginsing profile image
Ginsing
To view profiles and participate in discussions please or .
51 Replies

Aha! you were in the conference room Gins, been looking for you I have brought the bacon, rolls and condiments through from the other room :D

3. Relaxation................ sexy dude massaging feet :)

Ginsing profile image
Ginsing in reply to

sexy dude massaging feet ooh how wonderful tha is a brilliant idea zeb

Fibrofoggiest profile image
Fibrofoggiest

4. More relaxation .......... Expert deep tissue massage with either non scented (for those of us sensitive to smell) and lots of lovely essential oils to choose from. :-)

Ginsing profile image
Ginsing in reply to Fibrofoggiest

Mmh we do need it dont we foggy expert deep massage lovely ooh

A soak in the bath with lavender bubble bath. Followed by dry skin treated with lavender oil. Then snuggle dawn in a comfy bed that has freshly changed bedding, heaven.

in reply to

like the sound of that right now :)

sue32 profile image
sue32 in reply to

I wish I could actually get in a bath!!! :(

in reply to sue32

Thats not good we will build a walk in bath in virtual reality land, What would you like to see or do to make things better for us all?

Ginsing profile image
Ginsing in reply to sue32

Me too havent managed that for several years thank goodness for a shower xxgins

in reply to Ginsing

sometimes I can and sometimes I can`t, It depends on the pain levels in my arms sue x

in reply to Ginsing

I saw Occy health when in hospital and got a bath lift and its amazing even though it takes up so much room but to be able to have a bath again after many years of not being able to ....................... Brilliant!!

Ginsing profile image
Ginsing

So we are up to No 6 what do we reckon How about a glass of cool dry champagne and strawberries to dip in it. no7 a podiatrist of our own to look after our tootsies!

no 8 while we are at it a rheumatologist with knowledge of fibro and new methods to treat it.

no.9

Ginsing profile image
Ginsing

no9 our chauffeur driven car so we can visit each other!

no10 A comedian for grey days who will either make us laugh or who we can throw things at!

no. 11 Chocolate fountain and lots of delicious fruit to dip in it :)

Training for ALL medical staff so that they will at least know that fibro is NOT a "All about pain", and that pain is only one part of a complicated puzzle.

in reply to

I've been saying that this morning actually!!! spoooooooky :o

Ginsing profile image
Ginsing in reply to

Mayrose is so right and Zeb you too, lets teach them our problems so they can at least try and understand our position.

in reply to Ginsing

Exactly, it might not be a life threatening illness either but it sure is life changing having to adapt to a completely new way of life and learning how to do everything you already know in a different way.

My GP said yes to an awareness pack today, was pleased to hear there was one available :)

If everyone could do that it would help wouldn't it!?!

(must message Emma for said awareness pack) :)

Fibrofoggiest profile image
Fibrofoggiest

12. A lovely warm hydrotherapy pool with a physio who knows what specific exercises suit each of our needs, and nice huge white fluffy warm towels to wrap ourselves in afterwards :-)

flossy1 profile image
flossy1

No 13. We're all young, tanned, athletic and gorgeous... oh! dozed off and just woke up. Must have been dreaming. Xx

in reply to flossy1

Can I share in the dream please, turned a awkward after drawing the blinds and went down on my knees but why a head ache I dont know .Unless that is where I now keep my brain now. :)

Ginsing profile image
Ginsing in reply to

of c ourse you can and will share in the dream do hope you are ok xxgins

Weelamb profile image
Weelamb in reply to flossy1

Lol

in reply to Weelamb

Hi there weelamb did you like the piccy I posted for you? :)

Weelamb profile image
Weelamb in reply to

Awe yes love it, y thx u , didn't know it was 4me haha!!! X

in reply to Weelamb

:)

Lucyhobbit profile image
Lucyhobbit

No. 14 An endless supply of jaffa cakes

Sammicat15 profile image
Sammicat15 in reply to Lucyhobbit

ooooh yes, please :-)

in reply to Lucyhobbit

oooh yum

in reply to Lucyhobbit

Definitely, so low in fat :) eat as many as you like :)

Sammicat15 profile image
Sammicat15

keeping warm and cosy, so have lit the woodburner; having chocolate and a cuppa on hand; lots of cuddles and positive support; oh and a good supply of codeine to supplement the other meds when things get really tough......like today when I unexpectedly had to deal with a whole load of mildew because some numpty (not me) closed up the air brick in the bedroom ffs. Cue lots of cussing, cloths, wipes and towels........and guess who's got to wash a whole load of clothing she hadn't anticipated.........pah!!

Oh, stuff it - bring on the alcohol lol!!

in reply to Sammicat15

I would love to join you :) but booze gives me heartburn :( so cheers anyway..

hamble99b profile image
hamble99b

no 15 the best film you've ever watched.

Mdaisy profile image
Mdaisy

No 16. A couple of weeks at a really swanky 'otel where you can use Flotation tanks,Saunas & Steam Rooms and have Beauty treatments etc! All with lovely food by a Michelin star Chef with healthy fruit & veg smoothies full of vitamins & anti-oxidants !

in reply to Mdaisy

That sounds very good xx :)

missdove profile image
missdove

Hi there I am a newbie to this site, but have been on the thyroid site for a couple of years...

Thought I would join in, so for No 16 how about a big fluffy cloud to carry us along when we feel so tired and ache all over....If only huh? :-)))

Mdaisy profile image
Mdaisy in reply to missdove

Everyone is welcome to join in :) It's all a bit of fun! Cloud sounds lovely :)

missdove profile image
missdove

I used to live in Florida and the clouds there were the best, I was well at that time but even then I used to want to just jump into them...:-)

hamble99b profile image
hamble99b in reply to missdove

No18 a meadow full of fresh sweet grass and daisies so we can lay back and watch those fluffy clouds. :-)

TheAuthor profile image
TheAuthor in reply to hamble99b

No 19 As you lay on the gentle fresh green grass, smelling the aroma of heaven, the sound of happy children playing carries on the breeze. There is a sense of a moment of perfect beauty.

in reply to hamble99b

Oh! I'm there :) xx :)

in reply to

Me too :)

in reply to

Would you like a jaffa cake? while we're here.........

............ are you comfy?

Think I'm laying on a stone or twig or something :o

Ginsing profile image
Ginsing in reply to

just move it out the way it is a bit chilly! xxgins

in reply to Ginsing

already done, much more comfy ........... virtual land ;) :D ;)

<<<<POOF>>>> twitch tweek

Aw look a lovely camp fire............ marshmallow anyone?

TheAuthor profile image
TheAuthor

Oh! I missed this! Only just seen it online at 2.37 am. Typical me!

Hope everybody is feeling well?

Ken x xx

hamble99b profile image
hamble99b in reply to TheAuthor

Hi ken. :-)

TheAuthor profile image
TheAuthor in reply to hamble99b

Hi sandra99b

Hope that you are as well as can be?

Ken x

fenbadger profile image
fenbadger in reply to TheAuthor

Think you're slow. Look at me! Yes, ta. How's you?

sue32 profile image
sue32

20. Lying on a beach, hearing the waves gently lap on the shore while my personal chef cooks the most gorgeous meal and brings it out to me!!! Perfick!! XX

fenbadger profile image
fenbadger

No one said a bed time story. My daughter often nodded off before the end so I must have had some effect. Rude comments on a post please

You may also like...

Problems with waterworks!!

) I sit and have to wait for gravity so to speak. Very small amounts just trickle out and I sit for...

Am I within my rights to ask my employer for help?

this a disability or just a 'condition'? I'm off sick at the moment as passing a kidney stone has...

severe vitamin D defficiancy

I can`t sit in the sun without factor 50 as I blister.So don`t get natural vitamin d. Just thought

It's really getting me down

when I'm having a good day. We all sit in the lounge and drink tea and have a laugh and have a...

Hyposensitivity it’s like I’m sat on sandpaper

your all good as can be I can see it’s not just me having a flare I’ve not read very much about...