Fibromyalgia Action UK
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My skin is driving me mad

Does anyone else have itchy skin all over as mine is driving me mad from my head to my feet, I keep having hot flashes through my body and face and sometimes I really want to just rip my skin off, all this is since having fibromyalgia . Do anyone else feel like this and is it normal with having fibromyalgia. Kay x

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It could b medication i eould get it checked out tho x

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Yes I have been like this and was given high strength Fexofenadine an antihistamine by my gp which helped considerably but did not get rid of it completely. My scalp was so itchy that I wanted to shave my hair off! Skin biopsies showed inflammation and an odd cell condition but nothing sinister. I was advised by the pain clinic to go gluten free which I have done. I am not coeliac. The itching has reduced considerably and the blisters on my scalp have gone. I would scratch myself so much until I bled, even in the night, and this is much better too. I have no medical expertise, just letting you know what I have tried. Really feel for you, it's an awful feeling xx

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Yes, I've known of many people here who've talked about it, one fairly recently. I get it between my shoulder blades and down my back and sometimes on my feet. A friend gave me a telescopic back scratcher for Christmas, it's made of metal and oh wow, it really does do a good job !! As Maggiet mentions, there are meds which can help, so perhaps it would be a good idea to have a chat with your doctor about it, it could also be a side effect of meds, though I've had mine checked and they aren't the cause of mine, but we are all different and react to meds in different ways.

Hope you find some relief soon :-)

Foggy x

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Thank you for Ur replys im greatfull, I will make a Dr appointment gentle hugs to u guys x

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Hi, this must be awful for you. I have had a similar problem for about the last year. Hitting the dreaded menopause has not helped. Just a thought; I had to change all my toiletries to organic/natural products taking out all the laureat sulfate and parabens out of my body/skin care due to the irritants in the chemicals. Holland & Barret have a good range of skincare which is botanical and is really good. However, it can be trial and error. Also maybe check your washing powder/liquid. I have switched to the Eco range for washing clothes, the non-bio seems to help me. Anything is worth a try to get some relief. I hope you get something sorted from your GP.

Tannels x

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Thx u hun x

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My back has been itchy for years and recently so has my scalp. The doc gave me some shampoo called capsican i think.I used to itch all over well before fibro was diagnosed then discovered that so long as I stuck to the cheepo washing powders and beutey products the rash went and so did my sons skin problems .Id have thought that it would have been the other way round.That the cheep products would have caused the problems.I am starting to ramble so ill just say hugs Sue

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I get flares up every so often had one over Xmas after eating a Chinese take away, I feel hot and my skin starts getting itchy all over, sometimes I come out in hives, I always keep antihistamines in the house now thankfully they usually calm my skin down quite quickly.

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Do u get them from doctor or can u just get them from the chemist

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Quite a number of antihistamines are available as over the counter medicines from Pharmacies. Avoid the expensive branded products and choose a cheaper generic version. Some antihistamines produce sleepiness but others do not. Loratadine is a non-drowsy antihistamine available as a generic. I use it and find it works well.

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Hi, you have my sympathies, like lots I have it too,mine is linked to Psoriasis. I am on high dose Fexofenadine and Hydroxyzine to add to my fibro drugs. I shower and wash in Dermol, have Doublebase and Diprobase to rub into the affected areas, I used to have Zinc Oxide PB7 bandages until they put me on Methotrexate. Dermol do a non lather shampoo called Dermax and Doublebase do a handwash. All these are sulphate free. All on prescription although do check. One irritant is Sodium Laurel Sulphate, contained in most shampoos, switch to one that is not, takes hours at the supermarket reading backs of bottles but they are about. Try not to use bars of soap. Like the others, switch to a non bio washing powder and less scented conditioner and try adding washing soda instead of fabric conditioner. I cant wear tights or popsocks now as its either the heat or nylon that sets my psoriasis going. I've spent hundreds on itchy makeup thats been given away after one use and even now can only wear for a short period occasionally. I dont use 'products' on my hair or hairspray, and mist the air with perfume and walk through it to stop it rashing on my skin. Thank goodness for cotton knickers and bras. Going back to the hair/scalp probs, a gp or consult can prescribe Diprosalyic Acid for your scalp, didn't work for me,Dermax did till it calmed down. I'm afraid its a suck it and see situation till you find what suits you, but your gp should help if asked. Hope this helps. Gentle hugs, Lynn xx

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yes i do especially my head and arms and at all the scars of operations and get hot flushes periodically through day xxx

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I'm not saying it is this but have you heard of that substance M.I. and M.C.I? Look it up on the Internet, feed in M.I. and M.C.I and dermatitis. It is in lots of toiletries, make up, shampoos etc. My mother and I both had itching that was driving us mad and nothing helped. Then we stopped using M.I. and we both found our itching stopped. Worth a try.

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hi try pure coconut oil it has healing qualities and moisturisers skin use every day all over it must be pure though,hope that helps.

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i was diagnosed with contact urticaria about 18mths/2yrs before i was diagnosed with fibro. i was itchy from head to toe and whenever i scratched i would get hives, i could actually draw pictures and play o's and x's on my skin lol. i've been on fexofenedine ever since and it helps alot. i still get hives but i don't itch so much now.

i would deffo get down to the docs, it's so horrid when you're itching all the time.

good luck

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I no the feeling I'm the same even had the fan on in the office the other day was so hot and the itching is crazy xx

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