i'm such a simple soul...: and easily... - Fibromyalgia Acti...

Fibromyalgia Action UK

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i'm such a simple soul...

tulips123 profile image
7 Replies

and easily confused! my cousin, who thinks i'm intelligent, called in this morning whilst i was going through my e.mails, reading the HU daily posts etc. i explained i was unable to log in now 'cause system changed (May?) and the new system did not like me. she offered to take a look. Bingo!!! i have really missed you guys.

i also wanted to share something that some people may find useful.

about 3 years ago, i got fed up with local council messing me about. i needed a ramp/other alterations so that i could get out and about on my scooter. i e.mailed my mp, 3 days later, knock @ the door - men arrived to start work! freedom!

this summer my gp persuaded me to accept care package, and a financial assessment would be done because "everyone has to make a contribution". this sounded reasonable. 3 weeks after care started, social workers came to my home to look at bank statements/benefits etc, and 1 week later the result of that assessment arrived. picked my chin up off the floor, read it again. my "contribution" was, for 1 hour a day, 7 days a week, weekly £82.00. that's right, ONE HOUR A DAY, 7 DAYS £82.00!! enclosed was an invoice for the previous 4 weeks £328.00. i called the care people to cancel with immediate effect. i had to ask a friend to remove door key from key safe, as they insisted they had to keep coming until officially informed by social services. nobody from social services wanted to know, but kept sending invoices! my gp was also stunned, asked me if i had 'private means'. haha, ha, hahaha. ha.

e.mailed my old friend the MP, who once again contacted Chief Executive local council. Result? charge waived, and more to the point review of the whole procedure! i should think so too! i was considering e.mailing Anne Robinson @

Watchdog!

tulip xx

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tulips123 profile image
tulips123
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7 Replies
hamble99b profile image
hamble99b

well done you and welcome back!

Yeah! good on you Tulips :)

I've just received a list of domestics who come to help us and some if them are 14quid an hour with the cheapest being just above minimum wage

They must think I'm rich or crazy :o

:) xxxsianxxx :)

tulips123 profile image
tulips123 in reply to

i think the word 'contribution' was misleading. you dont buy something with zero guidelines on the cost!

then again, if you're crazy enough you could pay in monopoly money, and you're as rich as you like! xx

in reply totulips123

Good idea :) If we all did that in protest I wonder if it would make a difference? xx

tulips123 profile image
tulips123 in reply to

what we need is a sick person with the energy to organise a mass protest lol xx

Ginsing profile image
Ginsing

What a battle well fought tulips way to go they really cannot go on using us all as if we are able to pay for these services which should indeed be free to people in need. ""

tulips123 profile image
tulips123

'contribution' is misleading. i have full benefits and i would not mind making a 'contribution'. it does seem though that contacting local mps is helpful, and with elections coming in 2015 i am sure will become more so. cynical? moi? x

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