I got a letter !!!!!!!: Hi every one... - Fibromyalgia Acti...

Fibromyalgia Action UK

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I got a letter !!!!!!!

kathlaidlaw profile image
7 Replies

Hi every one . I got a letter from my consultant asking me to go see him

not one of his undelings but him . I have not seen his since 2009 . it all started when my doctor sent him a letter asking if the stim machine is any good for me he sent back saying it is no good for fibro and it would only be a placebo affect . And now he is saying he would like to see me . So maybe he will change my meds and put me on something that mite work .oh I do hope so . will keep you all posted .

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kathlaidlaw profile image
kathlaidlaw
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7 Replies
haribo36 profile image
haribo36

Hi there,that's good news then.What is the stim machine as haven't heard of it x

kathlaidlaw profile image
kathlaidlaw in reply to haribo36

it is called the Alfa Stim and Mdaisy has put a link on it

Hi hopefully good news for you my fingers are crossed for you Kath :)

Like Haribo, what is a stim machine?

xxxzebxxx hugs and fluffies

bluebell99 profile image
bluebell99

Hi

I didn't get the letter, even though I asked for a copy at the clinic.

Just phoned my gp surgery and there is a letter there but no mention of the TMJ the rheumy diagnosed, nor how long to be on Pregabalin or if there is to be an increase in dosage. Just, "this lady is showing symptoms of fibromyalgia", (she told me it was definite, even pointing out the trigger points) and the list of medications. I don't go back until April, I feel like I have been left hanging. GP has not asked me for an appointment so he must be happy, what is going on?

LaurieLee profile image
LaurieLee

Hi ya, are you referring to the Alpha-Stim? If you are, I have been using it for the past 6 weeks and I personally think it helps, with pain, depression, anxiety and often insomnia. I have reduced pain meds. Helps your med to work more effectively.

Mdaisy profile image
Mdaisy in reply to LaurieLee

Hello LaurieLee,

It seems in your experience you feel the Alpha Stim is helping which is good and this information about one study seems to report similiar findings, link below;

fibroaction.org/News/Update...

Research continues .... ....

Hope this is of interest

Best Wishes

Emma :)

LaurieLee profile image
LaurieLee

Thanks Mdaisy.

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