Fibromyalgia Action UK
38,657 members50,915 posts

fibro and sle

i am confused. my rheumy think my main symptoms are fibro at presents and considered reducing steroids to 5 mg. but when i mentioned about reducing/stopping plequnil he refused point blank. i am confused as he only seems to mention i have mild SLE when it suits him-when i mention it he refers to it as a connective tissue disorder. why stay on pleqnil ?

6 Replies

Hi there moss, hope your not in too much pain, not being rude but what does sle stand for and pleqnil? Gentle hugs to you ....Dee x


Hi Cookie in answer to your query SLE is Lupus .. hope that helps xgins

1 like

thanx for that gins, sorry for delay in thanking you Dee x


Go on Hughes Syndrome website. Lots of members there are on Plaquenil.


Hello Moss,

I had a diagnosis of Frozen Shoulder as initially my main pain was in my right shoulder and then I felt pain in the other quadrants. I asked for a second opinion and had appointments at a different hospital and they diagnosed Fibromyalgia using the ACR criteria, information via link below

It sounds like you are becoming so confused maybe you should consider thinking about a second opinion?

I was so relieved when I had my diagnosis but remember the days before when I felt almost lost not knowing. I think most of us remember & understand how you are feeling.

Please keep us posted

Emma :)


that s not such a bad idea. i think i have so much over lap in my conditions that the specialist finds it hard to pin point


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