I really think I'm starting to get my head round being ill. I'm not trying to fight it so much. I try and keep away from stress,I poodle about doing what I can do and not forcing myself to do things that will make me worse.
I used to be a right old superwoman,running my florist shop,looking after my kids as a single mum and looking after 4 dogs oh and my house. I was really burning the candle at both ends. Then bang I got ill. My old life had to stop. For the last four years I have fought it but now I seem to be finding my groove. It's not easy not by any means but I'm feeling a bit calmer and more accepting.
I've even faced facts and got a referral with a psychiatrist to finally help with the mental side of things,the chronic anxiety and panic attacks. I'm quite relieved.
Can still live in hope that with all the research being done that one day we will get better medication to help us. It's a roller coaster we are all on.
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Teddysmum43
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Well done you acceptance is one of the hardest things to achieve , but when you do and then sort out what meds and treatments will give the best quality of life you can with fibro ...life becomes a lot easier... I won't say there won't be bad times .. There are ... I am in a flare at the moment but I know now what to do for me when it happens and i know it will last 3 days now compared to weeks before .. And just knowing that makes it easier to cope...
I so understand and feel what you're feeling . Its a bumpy, emotional journey but I am also in a better place now than I used to be . I think its easier to cope when you have a degree of acceptance and remember there are better days ! I have also found gratitude for the so called little things in life. This illness has taught me many lessons about myself and others !
I am also potty about dogs !!! I have two, Bichon and a shitzue x
Im only 10 months into it , I would like to except it but think im a long way off , I just seem to be on a never ending emotional roller coaster , even doing a little food shopping , I have to come home as the pain stops me , ! Its great you are in acceptance , it helps to know that one day we can accept also x hugs angie x
Thanks guys I just want to say that doesn't mean I will have acceptance every day,some days I rant and rave at the unfairness of it all but they are getting less and less. But i can even accept i will have those days if that makes sense.This is how I'm feeling today,it may not be how I feel tomorrow but for the first few years I was rushing around trying to fix myself and getting incredibly frustrated. I was also dealing with the grief of loosing my mum which compounded everything,you loose your health then you loose the rock that kept you going,not a good mix at all. You can't get acceptance by just telling yourself either,it's just a feeling. Broadband 10 months is very early days,I'm comparing this to proper grief and that is how it is,just like loosing that person you used to be. Grief can take years to come to terms with. Larissa a fellow dog nut! I have three small ones now a pug, a chihuahua and a patterdale terrier cross. Animals are just so great aren't they? I just couldn't be without them.
I think you're being completely realistic knowing that no two days area going to be the same, and to just take life one day at time is a very good way of moving on with our fibro. I am glad that you have found someone who can. Help you with your anxiety issues and really hope that it begins to restore your confidence in you, cos you know, I know you're special
Am sending all good wishes your way, and you know where I am if you need an ear. Congrats on taking this first step on the way to a hopefully better life.
Congratulations I think accepting is the hardest thing and then rearranging your life to accomodate for the changes. It makes it more easy for all the family too as you are not as stressed. I did not realised I was stressed I had to stand back and look hard and boy I was wound up like a tight spring. Now I try and keep this from happening and the difference is magic. You are still you and your confidence will return good luck from one florist to another xgins
Hi. It's true, acceptance of the limitations is the hardest thing but with the biggest effect. It makes one less thing to be stressed out about.
You said it just right.
X
I'm glad things are more positive for you, as others have said we do still get bad days, but I too feel better bale to deal with things lately, I am going through a bad flare at the moment but feel it will pass in a few days and I am dealing with it better than I used to. This place plays a big part in helping me be more positive
Thanks everyone! Gins do you still miss the flowers? I do get so nostalgic when I see florist shops and I only have to smell the flowers to have a huge yearning. People say why don't I work from home but I'm just not well enough,just content myself with a nice vase of flowers every now and again. No one would believe what a physical job floristry is,freezing cold in the winter and a very dirty job. I have raynauds syndrome (excessive cold in hands and feet) and that was really hard. But the joy of creating something with flowers just filled my heart with happiness and satisfaction.
Sure is a roller coaster ! I've been riding it for 11. Years now and every time I go to get off it starts again and off I go!! Thing is though each time you go around you learn something else about the illness..and it is an illness,and also. Something else about yourself that it starts to make each run on the roller coaster a little bit easier,
Keep going! Sounds like your doing things right and who knows maybe someday we wake to world new announcing they have found a cure for fibro!
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