I've been registered on this site for some time reading posts but have never posted. I've had fibromyalgia since the birth of my daughter 9 years ago and last year had to stop working as the condition took a serious downturn. I understand everyone's frustration at this debilitating illness and in particular the soul destroying lack of support from the medical establishment, It took me 6 years to get a diagnosis and a subsequent 3 years of wasted Rheumy appts as no medications helped, in fact the side affects only added to the burden of dealing with a condition that is socially, physically and mentally torturous.
As with anyone who has this condition, I pray for some kind of breakthrough and (not wanting to get anyone's hopes up), my rheumy told me there would be no breakthrough in our lifetime and to 'live with it' - like we have any other choice but to live with it!. I came across this news story yesterday evening and wanted to share it with you. If the research is correct and in time treatment is developed ( I don't care how long as long as there is hope!) we can go back to our Dr's and say 'I told you so' (I'm not bitter!!! - much) and for those of us who have experienced distrust and disdain from the medical profession maybe we can now find relief in the knowledge that science supports what we've been saying all along. It's not in my head, it's very real and yes it's ruined my life and affected those around me.
As I said I don't want to get any ones hopes up, I know that over the years we've seen research comes and go but I'm so so tired of this pain and everything that goes with it, I want it to be true!
Best Wishes Rayne