Wondering if anyone can offer me some help and/or advice?

Hi Ali, your symptoms are same as mine. Rheumatologist diagnosed fibro, hope you get a solution soon. Best wihes

Hi Ali how has your appointment gone? Did your GP agree with you and have you been reffered for test and diagnosis' Let us know how it went please?

xgins

Hi Ali how has your appointment gone? Did your GP agree with you and have you been reffered for test and diagnosis' Let us know how it went please?

xgins

Hi Ali how has your appointment gone? Did your GP agree with you and have you been reffered for test and diagnosis' Let us know how it went please?

xgins

HiAli It took me a long time to get diagnosed people I new. had said about being fibro but I had not heard about it before doctors said it was a virus again and again then I read a article in Yours magazine it was as if I had wroth it took it to doctors and said that is me He then sent me to see a rheumatologist She gave me a injection and new meds done more blood tests that was novenber 12 went back lto see her 6 months later took with me a arthritis booklet I picked up at a pysio department on fibromyalgia I filled in the tender point figure wroth a weeks diary at the back and took it with me and said this is me. in october13 she took the book went off with rheumatolage nurse to read came in and said at your 1st appointment we thought it was fibro but had to rule other things out it was such a relive was diagnosed with ostio arthritis and fibromyalgia but buy then had lost the job I loved so don't give up get all the info you can on it and highlight part that is like you

Hi Ali_in_Somerset

I genuinely hope that you appointment went really well for you? What you have described could be Fibro but it could also be something else? As I am not a doctor I cannot actually say.

I have pasted you a link below to the FibroAction mother site, so I really hope that you find this useful:

fibroaction.org

I want to wish you all the best of luck and I hope that you can find a diagnosis one way or another?

All my hopes and dreams for you

Ken x

Ali, don't be discouraged. It is good that they are doing tests to eliminate other things. I was dismissed at first by a few drs who suggested it was in my mind or they just couldn't be bothered to find out what it was. It was only a locum GP in the end who was determined to find out what was wrong with me. I had x-rays, brain scans, blood tests galore, before they said it was fibro. It was a relief to have diagnosis in the end, as you can then treat the symptoms as best you can and you don't feel like a hypochondriac any more with constantly changing symptoms. I hope they diagnose you quickly and you can get some relief from your symptoms. xx

Hello Ali, the list of your symptoms you have described above could have been written by me! The only additions for me would be continual pain in my wrists, feet & knees, also inflammation around the knees, depression & anxiety (which i think is mainly due to my limitations & continual frustration, which i find quite difficult to deal with) also very poor memory/concentration.

Years ago i was diagnosed with Cervical Spondylosis, which can cause quite a few of the pain symptoms that i have, but they are not all usually synonomous with CS. Yet i have still been pushed from pillar to post, had many blood tests, even been up to Kings College Hosp, but still nobody will give me a definate diagnosis & the last rheumatologist i saw last year gave me numerous blood tests, an x-ray & then just sent me a 1 line letter in the post telling me that all my blood tests were fine & said "i've included a leaflet on Fibromyalgia for you to read"! Nothing about a diagnosis & no offer of any further assistance. I'm afraid i'm not tough enough with these docs/specialists, as i always tend to clam up in the appointments & find it very difficult to talk to them. You should definately be firm with your GP, Rheumatologist & don't let them fob you off & if you are worried that you don't feel strong enough to be firm with them, then take somebody with you who will help you fight your corner.

I also totally understand how debilitating it is to suffer with heavy & painful periods, i have suffered with them since i first started at 10yrs & they just progressively got worse, regularly making me housebound. Over the years I have had many different pills, injections, investigations, etc... & recently had an op to remove 2 lge fibroids which they finally found & have also had the Mirena coil fitted, so far the heaviness is greatly improved & the pain has reduced a fair bit, although with the Mirena as you may probably know, it can take up to 6mths for everything to settle down & become more regulated. What investigations/treatments have you received or been offered for your period problems? Also if you don't mind me asking roughly what age are you? I have a 5yr old boy & am 39yrs of age & just about to reach being fabulous at 40!

With my best wishes, Georgina xx

Hi Ali,

It very well could be, but only a doctor can diagnose . I'm sorry

you feel so bad. Once you get a diagnosis things will get better.

Please keep stress level low and a good attitude.

Wishing you the best.

Sweetheart, sounds exactly like me. I also had endometriosis and had to have a total hysterectomy at 30 years of age. Go to your doctor to get tested. If they don't or can't give you pain killers go to a pain clinic. I did and now at least my life is bearable. Hope you find some relief soon!!! xxx Mizti

Hi Ali

Ask to be refured to the min hospital In Bath... There grt there and will have you sort quick. They do presure point test..

best of luck x