feeling down with the clinic - Fertility Network UK

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feeling down with the clinic

cote8 profile image
14 Replies

hi. We had our follow up after a failed cycle, however I feel a mix emotion.

I manage to speak with the doctor, but they decide to don’t change my protocol because for them I responded well, that mean we continued with only gonal f… I tried really hard, to ask them to change their mind, but nothing… I had 9 eggs 6 fertilise, and only one embryo… my follicle count was 19, I have this feeling that I can have more eggs no?

At the end of the visit, they saw me upset and they just find ne “you need to remember you have only 20/25% of chance… we can’t do more than this”

We are nhs, how we can do this? We both feel like they don’t want to help us, and they just do another round without thinking about us, but only to their business

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14 Replies
JA-fnuk profile image
JA-fnukPartnerNurseFertility Network UK

This is a very stressful time for you and I hope you have taken advantage of the counselling appointment you should be offered while on treatment Hope you have people around you for support .

Take care

Janet -Partner

cote8 profile image
cote8 in reply toJA-fnuk

I do… but unfortunately the counseling can’t really help…

Tippyt profile image
Tippyt

So sorry your feeling this way. I can very much relate to you, I’m not nhs, but 3 rounds private and the penny dropped they have no interest in treating you it just a case of keep trying, spending money and see what happens. Ive asked about changing protocols as I get eggs but rubbish quality, got told no your eggs are a conveyor belt we just need to keep going to we get the good one!!! That was it, I was done (that was in writing btw)

I’m off to Spain next month and my god what a difference it has been already!

If you can afford it I highly recommend trying Spain

cote8 profile image
cote8 in reply toTippyt

Thanks for this reply! I was looking into ivf abroad… not sure If it will happen to us, but it’s really sad that in private is the same… they supposed to give you the best of chance

Christianbaby profile image
Christianbaby

it's great that you spoke up and expressed your feelings to the doctor. That takes a lot of courage. Even though they didn't change your protocol this time, it's important to remember that you have a right to ask questions and seek a second opinion if needed.

Regarding your concerns about egg count, it's understandable to wonder if there's more that can be done. Sometimes, the protocol might be working as well as it can for your current situation, but it's always worth discussing further.

As for feeling like they're not fully supportive, it might help to ask more questions about why they're sticking with the current plan. It's also okay to explore other options or seek advice from another fertility specialist if you feel like you're not getting the support you need. All the best. xx

cote8 profile image
cote8 in reply toChristianbaby

Thanks for the reply. I was really proud of me after the follow up, and my husband was really surprised how well I did it! No cry… just stick with the question, but I tried few times to understand why they don’t try something different… and the answer was always the same “for us you responded well!” “You had a successful cycle!”

But a successful cycle is not this! Successful cycle is when you get pregnant or have at least more than a embryo no?

When I express this they told me remember my chance are between 20-25% … it was really hard! I feel like I don’t trust them!

Cridog profile image
Cridog

I'm so sorry you've been through this and felt so unsupported. Unfortunately, I felt very much the same after going through a round of NHS funded cycle. We have 1 embryo and 5 eggs left, but decided to move to a private clinic abroad because our experience with the NHS clinic has been awful. I feel so much more optimistic now, the doctor we have at the clinic abroad is extremely supportive and willing to do everything she can to help.

I had quite a lot of reservations about the NHS clinic before we started, but we were struggling with the money at the time and decided to give it a go. I don't necessarily regret it, but I wish I followed my gut.

cote8 profile image
cote8 in reply toCridog

I was thinking the same to leave nhs, but we are lucky to have 3 cycle… I feel ungrateful to leave it!

I tried as well to change clinic but in my area there isn’t other clinic…

Emsk14 profile image
Emsk14

Hello, I’m so sorry you’re going through this. We were paying privately (at an NHS clinic) as we have a daughter already. We felt like we weren’t being listened to with our problems and we went round in circles. (Even though we were still paying) At the end of last year we decided to move to another clinic and it’s been the best decision. We unfortunately just had a failed FET (chemical pregnancy) but we did have implantation which we hadn’t even achieved at our previous clinic from 4 other rounds, so I’m taking that a positive and that it’s only a matter of time now 🤞🏻 x

cote8 profile image
cote8 in reply toEmsk14

I’m sorry for the chemical, but like you said is still a progress… unfortunately I never see a positive pregnancy test, never see a shadow nothing!

I was thinking to change clinic but unfortunately seems impossible in our area!

Emsk14 profile image
Emsk14 in reply tocote8

Thank you. I was exactly the same at our other clinic, I never had a positive test, not even a faint line, absolutely nothing in 4 rounds. Our new clinic have changed a few things which seem to be going in the right direction 🤞🏻 It’s so difficult having to advocate for yourself all the time. Wishing you the best of luck x

cote8 profile image
cote8 in reply toEmsk14

Thanks so much… I think I need to stick with my nhs clinic… my husband is not really into this ivf stuff… he is the type of person “let the universe do what it mean to do it…” he change is mind after see me really want to have a kid and i totally appreciated but I don’t think it will happy to move to private now…

LRed profile image
LRed

Sorry to hear this. I went through something similar at a well-known private clinic in central London. My consultant was arrogant and he did not listen. He kept reminding me that IVF was merely a number game and my chance was low. I didn't feel that I was treated as an individual, but instead I got a one size fit all treatment.

They even made a medical mistake in my last round. There was not a word of apology and not a penny of refund. When things seem to be going smoothly, everyone at the clinic appears cold but at least normal. But as soon as something goes wrong, you will see the ugliest faces and hear the harshest voices. I regret I didn't leave them immediately.

I hope you find a better consultant or clinic. x

cote8 profile image
cote8 in reply toLRed

Oh I’m so sorry to hear this! I feel the same… same protocol for every patient…

Unfortunately we don’t have choice to change because we are nhs

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