**Sensitive** Unmanageable pain after surgical management of MC

[Lamagarden]

Hello,

**Sensitive post** re miscarriage. Yesterday I came to hospital to have surgery for a twin miscarriage. I was told I would be out of recovery within 2hrs and sent home, it didn’t work out like that. In recovery, my pain couldn’t be managed. I had copious amounts of morphine and other painkillers but the pain just increased. Drs were baffled as my bloods were good apparently and scans looked fine and physical look couldn’t identify any left over tissue or clots. It felt like tissue still needed to be passed.

Had surgery at 8.30am and it was only at 7.30pm that I started to feel ok. They kept me in and have felt fine overnight.

I wondered if anyone has experienced this after surgery management of MC?

I choose surgical route to try and avoid the pain of the last two miscarriages.

This morning I feel okay, a bit sick but no significant pain. I’m guessing I’ll be discharged today.

Thanks everyone.

[Katiluna]

I' m really sorry for you last miscarriage and for all your losses 💔This is such a tough journey 😔I had a MVA with my 1st miscarriage- I thought the pain was well managed after the procedure. I could only feel pain during the procedure. I felt OK right after the procedure so was allowed to go home 15 minutes afterwards! With the 3rd miscarriage however, I felt more pain during the procedure, I started to feel very dizzy, my body felt very hot. It took about an hour for those symptoms to settle and felt OK afterwards. I went home an hour later.

I'm sorry your pain couldn't be managed properly during your surgery although you took a good amount painkillers! Glad to hear you are doing OK now after staying at the hospital overnight. Try to have as much rest as possible and be gentle to yourself XX.

[Lamagarden in reply to Katiluna]

Thank you for your message.

I’m sorry too to hear of your losses - it is such a hard journey. I think we had slightly different procedures as I was under a general anaesthetic for mine, so didn’t feel anything during the procedure.

I was expecting to feel ‘normal’ after the procedure and go home but I was just in so much pain. I asked several times if the pain could be related to my adenomyosis and I was told no, it’s not that. All other serious things were ruled out and I was told they didn’t know why I had such severe pain.

When I was being discharged, I asked the dr if I should be concerned at the mystery of the pain or not worried as the bloods and scans were okay. She said there was nothing to worry about and it wasn’t a mystery but just that different women respond to pain in different ways and there is an emotional element to pain. I could only accept this. Moments later she physically checked my belly and became concerned as she could still feel my womb and said she shouldn’t be able to. She asked if I had fibroids, I explained no but I have adenomyosis. She did a scan and saw the thickened wall of my womb and said this would definitely cause pain and in the area that I’d been complaining about the pain. I said I’d mentioned adenomyosis several times after re surgery and no one paid me any attention, she apologised.

I feel let down, that my condition was not taken into consideration whilst I was experiencing such extreme pain and instead it was thought that I just couldn’t handle the ‘normal’ amount of pain associated with the surgery - which just isn’t true. I don’t want other women to have this same experience. It affected the way in which the nurse viewed me and treated me in recovery and overall was an ordeal.

[Katiluna in reply to Lamagarden]

It's frustrating when some healthcare providers don't really listen to what the patient says and not take them seriously. This can lead to a negative experience and I'm sorry you had to experience that. I hope you will recover soon from both the physical and emotional trauma.

[Lamagarden in reply to Katiluna]

Thanks you xx

[Freeway24]

I am so sorry to hear of the loss of your twins and your previous losses. I know how tough it is. I lost twins in August and had an MVA. I was discharged quickly and ended up at the hospital the next day with extreme pain and high temp. It was a suspected womb infection so I had antibiotics. I had horrendous pain for a week after the surgery and took a few weeks to feel more normal. If you have any symptoms or problems after discharge then don't hesitate to ring the EPU emergency number. Protecting your womb is so important. I had to fight to get antibiotics and get the right help. Totally ridiculous really but I had a very unhelpful inexperienced junior doctor. Keep up your pain relief on discharge and rest up. I really feel for you as I know how hard it is. Be really kind to yourself and don't put yourself under any pressure. Sending you big hugs. Xxx

[Lamagarden in reply to Freeway24]

Thank you for your message, it’s made me cry! I’m sorry you’ve had such an ordeal too. I’m going to get to the bottom of what happened, what was missed and what could have been done differently as I want the hospital staff to learn from this so to maybe help women in the future. I’m not feeling great today, but keeping on top of pain relief and think I will be fine. I had an intense 8 hours post surgery. I think adenomyosis and pain after MC surgery is perhaps an unknown area- not sure. Thank you for the big hugs! I hope ur in a better place on your journey now xx

[Freeway24 in reply to Lamagarden]

Aww your welcome. Take it easy. Yes they seem to know very little about other gynae issues. I have a bladder issue which I told them. Bladder pain syndrome causes me chronic pain. They didn't have a clue. Long story but they made huge blunders with my whole treatment. I've made a complaint to the ICB rather than through PALS. Thank you for your kind words. I am getting there but it's hard still being childless. I find this group a lifeline! I am preparing for a new donor egg round in Feb. Just taking it easy right now. Give yourself plenty of recovery time. Keep speaking up about your recovery and get anything checked out, even if only just been discharged. Keep an eye on your temperature too. Dont let them dismiss you if your worried. Rest up and I hope you feel much better soon. You will be in my thoughts. Xxx

[Lamagarden in reply to Freeway24]

Thank you so much! Wishing you all the best for February. We’re not ready to think about next steps but it may well be DE route. I’m 43.5 years and I completely understand how it feels to still be childless. I hope we both get there in 2025 - let’s keep posted. Thanks again xx

[Freeway24]

Aww thanks so much. Yes definitely, let's hope we both have much more luck next year. Let me know how you get on. Take it easy. Feel free to PM me if you want a chat about it all. I know how isolating it can be. I hope you feel better soon. Xx