I was just wondering if anyone has had to have an endometrioma removed and was it ok and did it still leave your ovary intact and able to work for your next cycle?
I went for a scan yesterday, which I basically had to beg for before starting my meds on the 6th and my endometrioma had grown to just over 6cm. This was exactly why I wanted the scan as I said to my consultant I was concerned it could have grown and then when I get to the point where they would scan me (which was only once I was well under way with my stims) and they’d tell me oh you have a huge endometrioma and we can’t continue or that that ovary does not work. The nurse who scanned me went and spoke to a consultant next door and came back and said this consultant agrees I can have it removed. I felt obliged to make a decision then and she cancelled my whole next round and now I have a meeting with this different consultant next Thursday. I didn’t sleep at all last night because I can’t help but think this whole thing has been handled so poorly, if I get to this appointment on Thursday and this consultant says it’s a 50/50 and my choice on removing it I think I will actually lose my mind.
I have already had to wait 6 months to start the next round as my partner had raised oxidative stress which was 1.73 and should be 1.4 and below so he was on proxeed plus for 3 months and when he was tested he had gone in to reductive stress with his levels reading below 0.25 I think it was (so low it couldn’t be measured) which has also just left me totally exasperated as his levels were so slightly raised anyway I don’t know why he had to do this for 3 months for them to become so reduced! To a negative point which is probably actually worse than it was to begin with.
Sorry this is SUCH a long rant. But I have been having treatment since 2019, had 6 unsuccessful transfers, recently diagnosed with endometriosis which I repeatedly asked could I have and was told I had no symptoms of it. I just feel like I have been fobbed off so many times and ignored repeatedly, the lack of communication at times has been shocking and I often feel like I’m made to feel stupid for raising concerns or asking questions. Just totally fed up today and telling my friends is not much help as they really don’t understand the situation at all.
Happy Friday 😆
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Booda21
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Hi Booda. So sorry to hear this, and you're quite right, nobody knows what this sort of thing is like unless actually going through it. An endometrioma is a nasty thing, and I feel that you must be brave and act on your specialist's advice. He/she will do their absolute best to save as much of your ovary as they can. remember that they want you happily pregnant too. Just wanted to wish you all the best with whatever decision you make, and of couse for eventual success. Diane
Thanks Diane! You are right, I know I need to listen to the experts but it’s just so frustrating all the waiting and back and forth and feeling like I am getting nowhere. So annoying this has happened but there are people in worse situations. Thanks so much for taking the time to reply and for your well wishes xx
Hi so sorry it took you so long to get your endo diagnosis, sounds so frustrating. I also have an endometrioma similar size and they have left choice to me which I’ve found very stressful. They’ve said they would prefer to remove it but there is a risk of damaging ovary or even losing it (although I think it’s unusual for that to happen) or I can go ahead with stimulation but risk it getting bigger or not getting any eggs if it’s taking all the room up. Still unsure what to do as I’m very nervous about more surgery as had a few operations already on my ovary. Hoping it just magically disappears! Hope your appointment goes well x
It’s so hard to know what to do isn’t it! The nurse I spoke to said that she can’t tell me what to do as it’s unprofessional but that if it was her she would be highly inclined to get it removed. So I think that tells me I should get it removed. From what I have read it says over 4cm is worth removing. It was only 4cm in sept so has grown from then to just over 6cm. And I didn’t even have it there this time last year! So it’s going crazy. I wish you could wave a magic wand and know all the answers. Yeah mine is taking up most of the room now, you couldn’t really see any follicles, just all cyst! Really hope you come to a decision you’re happy with. Just another big bump in the road isn’t it. Good luck to you xxx
Hi Booda I have a large endometrioma on my right ovary measuring around 4.5cm. Sorry if this doesn’t help I just wanted to give you my experience. I asked about having this removed because I have low AMH and I really need to be able to get eggs from both ovaries. My consultant said no as it can cause scar tissue and could potentially be worse for follicles and the ovary. However I am lucky enough that I manage to get some follicles grow around the cyst. Do you know if you have had any follicles grow around it? Ultimately though your consultant is the specialist. I’m really sorry you are going through this I was devastated when I found out.
Hi Bluedestiny. Yeah I was in the same position prior to this scan, they said I still had healthy tissue surrounding it. But now it seems like it’s grown that bit bigger it was just filling it all up! Such a pain in the bum. My AMH was ok still I think when retested in November, hopefully this growing hasn’t affected it further. Glad that you still have follicles growing around the cyst! Wishing you all the best. And thank you for replying xxx
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