Chocolate cyst/Endometrioma success stories?

[Megandmog]

Hey everyone,

So I got a call from my consultant to say I have a 9cm Endometrioma on my right ovary (this is my only ovary as my left one was removed last year).

Obviously I am devastated it’s an Endometrioma because it can diminish the function of the ovary and kill the eggs. Does anyone know how likely it is for this to happen when they remove the cyst? It’s my only ovary so I am terrified I will not be able to have my own children. I have been referred to an endometrial specialist to remove it which is good. Hopefully I will get it done before the new year. How will I know if my ovary has been damaged or what my ovarian reserve is after the op?

Any advice would be greatly appreciated.

[Autumnmoon]

Hi if you are seen by an endometrial specialist who is ski)ed he may well be able to remove the endometrioma and preserve your ovary as much as possible my daughter had 8cm endometrioma successfully removed prior to IVF and now expecting baby in Dec wishing you all the very best for success x

[Megandmog]

Thank you for your response. It is comforting to know your daughter successfully had an Endometrioma removed. I know he is MRCOG registered although I have no idea what that means! x

[Autumnmoon in reply to Megandmog]

Not sure but those letters may only relate to obstetrics and gynacology I would advise you check regarding experience with endometriosis x

[Hidden]

Hi Hun, I had a ruptured ovarian cyst & a 10cm cyst was found & removed on the other ovary. I had more surgery just over a year later as large cysts ( 8 to 10 cm ) had regrown on both ovaries. I did concieve naturally twice afterwards ( both pregnancies ended in miscarriages). I'm currently 34 weeks pregnant after my first IVF cycle age 41. Hope everything works out well for you. X

[Megandmog in reply to Hidden]

Hey Gracie, thank you for you reply! Do you mind me asking what type of cysts you had? I’m so happy your IVF cycle worked and you got your miracle baby 😘 xx

[Hidden in reply to Megandmog]

They were all chocolate cysts Hun. I too was scared that my ovaries would be useless as I didn't know damage could be done during surgery til afterwards. All I can say is I didn't concieve at all before surgery though & had tried for years. I hope your surgery goes well & you get your happy ending too. X

[Megandmog in reply to Hidden]

Thanks so much for your response hun. This is all giving me so much hope 🤞🏻 xx

[emmab178]

You need to ensure the surgeon is minimum BGSE certified. That means they've had the relevant training for endometriosis. You have the right to be seen in a bgse centre if you have severe endometriosis. Most gps don't know that and most surgeons unfortunately go ahead regardless of their lack of training with the BGSE.

I have only one ovary, if underwent surgery on that second one then there's only two surgeons in the UK i would let near it.

There's a fb site which i will message you that you can all about specific surgeons and people's experiences.

[Sam11_endo1 in reply to emmab178]

Hi Emma, would you be able to PM me the names of the surgeons you trust please? I have endometriomas again and looking for the best surgeon to be careful with my ovaries.

[PawPrints]

Hello. I am currently waiting for an ultrasound. Back in 2010 I was diagnosed with chocolate cysts. My doctor at the time told me that all women get cysts, that they were very common, these would likely shrink and to just take paracetamol to manage the pain. He told me that he did not want to refer me for a laparoscopy even though they could be related to endometriosis. I left that day feeling very silly and as if there was nothing wrong with me (I was only 18 at the time). Fast forward 8 years and I have been suffering with extremely painful periods and painful sex since then, convincing myself that it must be normal but have had endometriosis at the back of my mind. Last month I visited my new doctor and asked that she take a look at the previous notes and provide me with a second opinion. She immediately did an internal examination and referred me for a transvaginal ultrasound which I have next week. I have felt sick with worry during the wait. I’m convinced that my ovaries will now be completely ruined :’( any words of encouragement? X