Update on repeat HCG: Unfortunately... - Fertility Network UK

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Update on repeat HCG

Blueberry211 profile image
14 Replies

Unfortunately, the repeat HCG is negative hence I miscarried my first FET.

We are utterly devastated. We have a follow up call with the doctor tomorrow.

Is there anything in particular that I should bring up with the doctor ( apart from the usual questions of what can be done for future transfer)?

What has helped in your successful transfer?

Should I give up? It seems a challenging road ahead.

Thank you for the support 💔

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Blueberry211
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14 Replies
DianeArnold profile image
DianeArnoldPartnerNurseFertility Network UK

Hi Blueberry. So sorry to hear this, and I do hope you've got plenty of support just now. You might like to mention low dose soluble aspirin and/or heparin to help ensure a good blood flow to your womb and the lining and to work towards preventing clot formation, if you haven't already done so. Hope they can give you some answers. Diane

Blueberry211 profile image
Blueberry211 in reply toDianeArnold

Thank you. Will ask on this treatment and see the doctor' s opinion. Do you keep taking it all throughout pregnancy?

DianeArnold profile image
DianeArnoldPartnerNurseFertility Network UK in reply toBlueberry211

Hi Blueberry. Usually up until 12/40wks and later if specialist recommends it. Diane

XOXO13 profile image
XOXO13

I’m so sorry to read this, sending you hugs.

I remember my first unsuccessful transfer and I was completely broken, it hit me so hard because I really believed that it would work - everything was so seemingly “perfect” but sadly, these things don’t always work out the first time for many of us. I hate to use this expression but I’ve found it to be true, that IVF can be a numbers game. Just because it didn’t work the first time, doesn’t mean it won’t the next time.

I always wanted to explore something new with each unsuccessful transfer. After my first, I had a HyCoSy, after my second I had further bloods that revealed I needed blood thinners for my third transfer and when my third ended in a CP (like what you’ve had), we had karyotype testing and a hysteroscopy.

When those came back clear, we decided to move clinics and explore more controversial testing such as immunology. That picked up elevated NK cells and for my fourth and successful transfer, I started on steroids from day of Stims, intrapilids and also started my blood thinners much earlier.

Take this time to grieve and ask all the questions you can think off. Keep going, everything crossed second times a charm for you! Xx

Blueberry211 profile image
Blueberry211 in reply toXOXO13

Thank you so much for your reply.Is that a blood test (NK cells)? And what does that mean?

What are intralipids and what is their purpose?

XOXO13 profile image
XOXO13 in reply toBlueberry211

It’s a blood test but very expensive, and isn’t for everyone. It’s advised following recurrent implantation failure, recurrent miscarriage and if you tick the markers for someone likely to have elevated NK cells. Intrapilid is a steroid to help suppress the NK cells.

There’s lots of things you can try before getting to this stage though. Xx

Missy-T profile image
Missy-T

Oh Blueberry i'm so sorry to hear this. I was really praying for a different outcome for you but I am also glad you're out of beta limbo which is a rubbish place to be. I hope your clinic are kind to you and help you work out what can be changed for the next time. Lots of love to you x

Blueberry211 profile image
Blueberry211 in reply toMissy-T

Thanks Missy T! Really appreciate your support. How are you today? X

So sorry to read this. You will have a follow up appointment which will be a useful session. There is no denying its a difficult road ahead but to get pregnant on your first round is fantastic and not sure if you have any in the future but you definitely shouldn't give up unless you can't face any more (and everyones experiences are different). It doesn't feel like it now but actually over time you will realise this was a good start and even better if you have some more in the freezer and there is no reason why you won't get pregnant and have a successful pregnancy next time. Huge hugs xx

Blueberry211 profile image
Blueberry211 in reply to

I have one other frozen which I will transfer in the future. I have a follow up session tomorrow and will definitely go through what might have happened and what can be done from our end to reduce the risk.Thanks for your support

Fruitandflowers profile image
Fruitandflowers

I'm very sorry. Seeing the two lines after so long and then having it go is so hard. It happened to me on two back to back on fresh transfers this year. It may not feel like it now but we were told to see all the positives, like you got eggs, they fertilized, made it to blast, they implanted... This apparently ruled out a lot of potential issues and tests. We were told it was a numbers game. I didn't like that idea and when the same thing happened a second time I thought something had to be wrong but the consultant couldn't come up with anything. However our FET the following month was successful and with that I had requested to be put on progesterone vaginally (apparently better at getting to the uterus if that's an issue - quite common with endometriosis and/or PCOS), lubion injections, aspirin and different vitamins (with the fresh I was on cyclogest only). It could have been chance, or because my body was recovered for the FET and not for the fresh, or maybe it was one or all these things. It's a very individual decision whether you try again and for how long, for some people they've been through too much physically and mentally (before even getting to financially). But there are so many stories on here which should give you hope if you do want to carry on.

Blueberry211 profile image
Blueberry211 in reply toFruitandflowers

Thank you for your reply ❤️❤️ it means a lot

Ladycoco20 profile image
Ladycoco20

So sorry lovely… sending you strength 🤍

Blueberry211 profile image
Blueberry211 in reply toLadycoco20

Thank you!

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