Hello
Anyone still out there with a FET cancelled midway in March who has still not been called or even given an estimate of when they can cycle again? I am so angry with the lack of consideration from my clinic. They don't even update their website! I wish I could say it was because of COVID, but this is how they have been the whole time. I want to make a complaint, but I am wondering what good it will do at an NHS hospital? It feels like we don't matter.
C xxxx
Sorry your clinic hasn’t corresponded with you at all. It must be so frustrating for you right now especially as yours was cancelled midway through.
Every hospital should have a PALS (Patient and Liaison Service) this is the avenue you can initially complain through. They are supposed to come back to you with information within a certain time period. Appreciate that department might be a little understaffed at the moment but it should definitely trigger some sort of response as the complaint it will have to be fed back to the fertility clinic at the NHS hospital. PALS aim is to deal with complaints before they become official claims against the hospital and so I think complaining via them first even if it’s just to say look I know the hospital is busy re COVID etc but it’s been 11 weeks and you have every right to be kept informed of your treatment so someone needs to update you ASAP.
Hope that helps.
Xx
Yes! Thank you for that clear-headed advice. I am feeling all over the place right now. I can handle more waiting. After three years I am fucking master at waiting for the NHS but I feel disrespected honestly by the lack of care they shown for keeping us informed and up to date. I just want to know an estimate of when I could receive treatment. At the moment, all I have is 'some people have been prioritised, we are working through the list, wait to be called'. xxx
I’m really sorry about that, I’m going into my third year TTC and it’s actually the waiting and the unknown that really kills me. If someone said you will definitely have a baby on this date, even if it was 2 years from now I could probably accept it, but having no idea if or when it will happen is awful.
I used to work in-house in the clinical negligence department at the nhs so I would get most referrals from the PALS team if they could no longer resolve an issue. I would definitely say in your letter/email to them that it’s taken you x amount of time to get to this point and as your treatment was cancelled half way through u are a priority and HFEA have provided clear guidance to get clinics back up and running weeks ago so they should be informing all patients ASAP of plans to recommence treatment.
Best of luck my love and really hope it’s not much longer xxx
Got a response, if you can call it that. They have no idea when I will be seen. ‘Likely’ by Autumn but they can’t be sure because although I had my treatment cancelled I am at the back of the waitlist 😭
Oh my days! I'm having a wobble today. My clinic are open to calls but still NO IDEA when treatment can resume. They share theatres with main NHS hospital and have not been given any access. There is going to be a huge backlog of surgery incl cancer, orthopaedics etc. I totally understand the triage rationale but still it's hard to deal with. IVF does seem to be low priority 😞. F-off COVID19!!! We gotta try get on with life in the meantime. Xxx
Is yours on HFEA list? Mine has just been put on but still not heard anything 🙁 xx
My clinic has been on HFEA list for two weeks. I've been able to speak to them but today they officially announced FET only. While they have no access to theatres they are exploring alternative options for fresh cycles. It is within their interests to reopen - NHS orPrivate still need to generate income.
Hi there I got in touch with mine 3 weeks ago was told she couldn’t find my notes! 🙈 then said she was sure I was on a waiting list (due to my age)! Then that a dr should have called me re the protocol - nope they hadn’t, then why hadn’t I asked for a nurses consultation? Because at my consult with the professor he said to wait until you opened then call to make an app - you’ve only just opened! To that I was told I’ll check and if I don’t ring you back you’ll be on the waiting list! I stupidly said oh ok!!! 🙈 my hubby then said well that was daft now if we don’t hear we’re assuming we are but we might not be!!! Anyway this week I hadn’t heard anything still so called! Couldn’t find my notes but then said she would go and look to which she found them sat on a pile on someone’s desk! Saying I would have got a call eventually!! I’m 40 and awaiting a frozen transfer so had thought I’d be fairly quick but feel of I hadn’t chased up I’d still be waiting - I jos have an app via video link on Thursday so I’d defo call and see if I were you Xxx
Thanks for sharing. I could have written this post too. Very frustrating as I am also paying privately. I agree with what everyone else says - it’s the uncertainty of not having a timeline which is the hardest - ivf supposed to give us control but now it’s not! It doesn’t help when everyone else seems to falling pregnant around us. This has been the toughest time during our journey. I just hope our patience will pay off!
My counsellor used the analogy of a delayed flight and we’re stuck in the lounge waiting but we will take off. Try to enjoy this downtime if we can and take our minds off it (easier said than done mind you) hang in there for all of us who are struggling xx
I could have also written this post. I was due to start my FET on my April cycle. However it got moved to May due to Covid. At first they said I’ll be seen pretty soon after they re-open however now they are saying I should expect a phone call in September to discuss when my treatment will be.
It’s very hard but we have finally made the decision to move our embryos even if there is a wait elsewhere the lack of care and 16 month wait for my fresh transfer has given me the push I need.
Mine was canceled part way through in March too and I’ve not heard anything either... 😔 Xx
It's very frustrating!! I'd just like a estimate date as just feel I'm checking phone all the time for a call!! Just a rough idea would be great!! Feeling in limbo land xxx hope you hear soon xxx
I know what you mean , i keep looking at mone ☹️ Surely the clinics need to have some duty of care towards us to let us know what is going on x
We’re the same. Was a week away before transfer when lockdown happened and not heard anything since then x
Thank you all you lovely ladies for reminding me I am not alone in this. xxxx
EPU says no
Still no period 
No result ;-)
