Hydrosalpinx after myomectomy

[Tumblebee]

So so bumped to find that I know have been diagnosed with hydrosalpinx on both tubes.

No history of STDs and been almost begging for check-up before discovery of new condition which started after a functional cyst was discovered.

Been sad and upset that I haven't been listened to nor given after care following a major surgery to remove large fibroids.

Doc just went straight to say -right you can't have children without IVF like it was sorry we are out of something! Who does that?

Anyway, anybody reading this should say a prayer for me cos I have lost hope in the NHS after all this!

[emmab178]

Just a thought, do you have any symptoms of endometriosis? Mine was found with hydrosalphinx on a tube and a cyst on the ovary. I doubt really have symptoms so it was a bit of a shock

[Tumblebee in reply to emmab178]

Hi Emmab178. Thanks for taking time to read through and reply. I asked and was told I didn’t have endo or PCOS which is a huge relief. I’m just at a loss what to do especially as I want babies and IVF is pretty expensive

[recidwen]

Was thinking the same as Emma below. They think my bi-lateral hydros were because of a case of PID as a teen, but I also have endo. It was recently diagnosed. For a long time, they thought it was a 'functional cyst' but it turns out it was an endometrioma. I understand what you mean by feeling 'betrayed', you really have to be your own advocate in the health system. The news that IVF is the only option hurts big time, it took me a long time to grieve. Did they remove your tubes already? x

[Tumblebee in reply to recidwen]

Hi Recidwen- thanks for your kind comments. It sure helps to share experiences. Not yet removed and I was hoping I would be given more time to think about it but got a letter saying I’ve been discharged back to my GP for declining treatment. I didn’t decline by the way, I was under the impression that I was to come back when I’ve decided I want the surgery. I’m not sure they want to help if any, granted I’m not a UK/ EU citizen but having paid a hefty health surcharge for my visa, the least they could have done was offer me some level of care which I would normally get in my country.

[DianeArnold Partner Nurse Fertility Network UK]

Hi Tumblebee. So sorry to hear this after going through a myomectomy. Well, I suppose that's your womb in order, now for the tubes! Looks like you may need to have them clipped or removed to prevent any excess lubrication back flowing into the womb and preventing implantation of a developing embryo. Sounds all very abrupt of me, but I do really hope that this can be overcome and that you can find a way of going through IVF/ICSI - and be successful. Thinking of you. Diane

[Tumblebee in reply to DianeArnold]

Thank you so much for this message of hope. Dealing with such a blow and then being sent back to my GP doesn’t help at all. How I was supposed to decide in less than the 20min appointment is what I don’t get? Also was only offered a removal and told to go read up on my condition.

In all, I got a rather mixed up message from consultant- I quote- you could try naturally but I’m not sure it can happen- I don’t think i was aware of what went on that visit! I’m so angry and upset every time I remember how dismissive you it all was!