Hydrosalpinx found during ectopic surgery.

[ashley1906]

Hi everyone hope everyone have a wonderful Christmas.

I haven’t posted in a while but really would like some advice from ladies who may have gone through treatment for Hydrosalpinx.

On my last ivf transfer I found out I had a tubal pregnancy at 7.5 weeks after collapsing at home. had emergency surgery and nothing was mentioned at the time but in my discharge notes they made note of hydrsalpinx on left tube ( ectopic was on right side and they managed to save the tube) which my ivf clinic questioned did they treat this the Salpinx. I got in touch with the surgeons and he confirmed they didn’t.

I’m now booked in to see the surgeon tomorrow and discuss how to deal with this as I cant have any further treatment until it’s resolved. From those of you who have experience with this what questions should I ask ? And in terms of surgery for this how long do you normally have to wait till they operate to treat it? And would you say removal of tube is best option or to clip one side ?I would really appreciate any advice.x

[Jenifer99]

Hi Ashley,

I was in a similar situation as you though mine wasnt pregnancy. I had hydrosalphin due to endometriosis and that affected by both tubes. My clinic adviced I had to remove both tubes else the chance of my ivf being a success is limited. I cried my eyes out as i am almost 38yrs old with no child of my own and the success of ivf working for me is limited due to poor ovarian reserve but with the courage of my dear husband and family i took up the bold step... got the two tubes removed and am glad to say am now heading to 17weeks pregnant from my first ivf attempt . Is all about faith and determination.

Best wishes on any of your decisions xx

[ashley1906 in reply to Jenifer99]

Hi Jenifer , thank you for replying. And congratulations on your pregnancy it’s so amazing to hear stories like yours that really gives me hope.

I’m not sure but mine too might be the same reason as I too have endo and was diagnosed when they did the laparoscopy for the ectopic they said it’s severe but again I’m not sure I will ask the consultant and see what he can tell me.

Wishing you the best.

[Jenifer99 in reply to ashley1906]

Thank you so much and wish you all the luck on your decisions xxx

[Hidden]

I also had a hydrosalphix and they removed my left tube. It was a very similar surgery, I felt fine after about one week. Most doctors will tell you that removing the tube is better than clipping it because otherwise it can grow back. I have consulted many doctors and they told me complete removal is best.

I am so sorry to hear about your tubal pregnancy, but feel comforted knowing that tube removal or clipping is a very common and simple procedure. Wishing you lots of luck with your next cycle xx

[ashley1906 in reply to Hidden]

Thank you Anna I think removal will be the way forward I can just hope for the best. This journey has taken over my life hoping this time next year things are very different x

[Hidden in reply to ashley1906]

I completely understand - it’s all consuming and utterly exhausting! I hope with a little luck and persistence it will work ❤️

[Hidden]

Hello and Merry Christmas. I had hydrosalphinx in both of my tubes and the doctors recommended surgery. I waited 10 months for my surgery but the recovery was remarkably quick and I was able to undergo my first IVF cycle just 3 months later. My tubes were both very swollen and the liquid inside them can be toxic to an embryo so it was best they remove them. We had a BFP just over a week ago but I remain wary until we’ve had a viability scan. Best of luck with it all and let me know if you have any more questions about the surgery. X

[ashley1906 in reply to Hidden]

Hi Katie and Merry Christmas. How amazing congratulations on you BFP and wishing you the best for your scan.

Ten months seems like along time to wait for surgery. It has been causing me pain on the side its on I hope I’m not waiting months and months and I don’t want to have it done with my ivf clinic they are in Greece and the thought of being away from home and having surgery scares me. Thank you for replying x

[Hidden in reply to ashley1906]

I am sure they will treat you sooner than 10 months. I was unlucky in that my surgeon was a fertility specialist and was very busy and had a long list as it was at a big London hospital. I can definitely reassure you that the surgery isn’t too bad at all and hopefully you’ll be on to the next stage of any treatment and pain free before you know it. Wishing you all the best. X

[Star9]

Hi there, so sorry to hear about everything you have been through.

I have had two operations for hydrosalpinx.

The first one I had on the right tube before my first round of ivf. During egg collection they had concerns that I also had a hydrosalpinx in my left tube (which hadn’t been seen before or could have appeared). Went ahead with embryo transfer which resulted in a bfn. I had further tests and I did indeed have a hydrosalpinx in my left tube which I was advised needed treating before continuing with further ivf to enhance my chances. You may have already been told - but the fluid from the hydrosalpinx can reduce the chances of an embryo growing/implanting.

Both times I had my tubes clipped. The first I waited 3/4 months on the NHS. The second time was unfortunately over the winter flu crisis and meant I was on a one year waiting list! So I paid to have it done privately and was booked in the week after!!

Both times I was signed off work for two weeks - but felt fine after a couple of days. Both times I was able to start ivf treatment following two periods after the op - which was just a day stay in hospital.

My second cycle was successful and I now have a 10 month old baby girl, so it was all totally worth it.

Wishing you all the best and hope your appointment goes well xx

[ashley1906 in reply to Star9]

Hi Star and thank you for replying.

I am considering having it privately if it’s more than three months wait.

Congratulations on your baby girl so please d to hear it worked for you.

Hopefully the consultant I’m under will see how much this is affecting me and we have had so much heart ache. I just need for get thing moving with the surgery so I can plan the Ivf.

Yes your right I know it can affect a pregnancy from progressing I have lost two ivf pregnancies this year and It might just make all the difference. X

[me08]

Hello,

I had hydrosalpinx in both tubes due to endometriosis. I was advised by my surgeon to remove both tubes which I did and I wasn't too bothered about if I am being honest as I would do anything if it means improving my chance of having my own baby.

I had one less thing to worry about at my last IVF procedure and I am now 33weeks+2days pregnant.

All the best on your journey and I hope it will all be worth it for you x

[KW83]

Hi Lovely. Another success story for you - I had hydro diagnosed in both tubes during fertility investigations. Waited 5 months for surgery, both tubes removed and started IVF 6 months later. Could in theory have started a bit sooner than that but u had thyroid issues to get under control as well. First fresh IVF failed but we had one in the freezer, transfered 9 months after surgery and he's now a beautiful 3 week old bundle sleeping on my chest. It's devastating to hear you have tubal issues but actually is one of the least concerning in IVF terms because they are bypassed anyway. All the best x