As advised by the reproductive medicine unit, I visited a and e today with abdominal pain. I was sent to the EPU because my pregnancy test was showing positive still, 3 weeks after the operation to remove my twin pregnancy. They found blood in my cavity (which is normal given my situation and apparently wouldn't cause pain) and they said I've ovulated from both ovaries recently and that ovulation can cause pain after a d and c. The consultant then came along to have a look as the first dr wasn't totally sure what was going on. The consultant discovered that my right fallopian tube is swollen and diagnosed a hydrosalpinx, he asked me if anyone had flagged this before (they haven't and nor did the first dr who scanned me today). He said I couldn't have further IVF until this is sorted. He said it might sort itself out or I'd need to have surgery to "clip" it or have the tube removed. He said otherwise it can sabotage a pregnancy. I asked him if this might have cause my miscarriages and he said "it's impossible to know". I'd just like to hear from anyone who has had a diagnosis similar to this and what happened next? I'm hoping that the d and c has caused this and that it will rectify itself but I didn't ask him the likelihood of this. He spoke so casually about removing my fallopian tube. Surely that's a last resort? He said if they clip the tube to prevent toxins leaking into my womb that it's not reversible.
Hydrosalpinx after d and c: As advised... - Fertility Network UK
Hydrosalpinx after d and c
With how IVF meds, surgery etc can cause inflammation and reactive ovaries, this can influence the scan appearance. (Ie your ovaries can look inflamed or cystic after a recent cycle of IVF but it doesn’t mean that there’s anything wrong). Hydrosalpinx can be diagnosed with a HSG after everything has properly calmed down and if it is definitely present they can try to unblock it manually without resorting to tube removal/clipping which is quite drastic and worst case scenario as it’s irreversible. Personally I would seek a second opinion.
Thanks for getting back to me, he said they need to rescan to reassess it so someone else will be looking at it again x
How are you anyway, hope the abdo pain is better. I assumed they really wanted to check initially for retained products causing a positive test and infection.
Yes that was their main aim and to also make sure I didn’t have an ectopic pregnancy. I’m okay but I am wondering whether I ever had one of those saline scans and if this would have been flagged sooner if they’d done one. Now that I’m on paracetamol and ibuprofen I feel fine the paracetamol on its own wasn’t working.
Hello lovely,
I had both my tubes clipped before starting IVF as they said the toxic fluid in the hydrosalpinx would be leaking in to my uterus and would definitely cause issues with implantation.
I doubt your D&C would cause this unfortunately. It’s likely that you had this prior to your miscarriage although like your doctor said it’s impossible to know if this was the cause.
The tubes can clear themselves I think but it’s not always the case and if you’re planning to progress I would definitely consider the clipping before.
Sorry you’re experiencing this xx
Thanks. I had a google and also reached the conclusion that it wasn’t the d and c but I am wondering if it’s been there a while why he spotted it and no one else did. He showed me on the scan and it was obvious. I also read that if you can see it on an ultrasound it’s likely severe. In a way I would like it to be this causing us issues rather than all my embryos being abnormal as this seems more easy to solve x
I had a HSG to diagnose mine because they couldn’t see them on a scan but they did see them at my first egg collection (I had the first cycle then froze the embryos then had them clipped).
Yes I would imagine that this has been impacting your treatment so far 
Xx
I was diagnosed with hydrosalpinx in both tubes and had them removed as part of a laparoscopy. I was told I’d never sustain a pregnancy as the toxic fluid would flush it away. I had already had 2 failed cycles and a miscarriage at 6 weeks as it wasn’t picked up by my first clinic despite having multiple scans. The gynaecologist who detected my hydrosalpinx was so matter of fact about it, I came out the hospital in tears. But looking back I’m glad I had them removed if it meant it was unlikely I’d never keep a pregnancy and it took away that little bit of hope that I might conceive naturally. Wishing you all the very best. Xx
I’m just a bit confused about why they don’t check the tubes as standard practise as in do a saline scan. I’m not convinced I’ve ever had one. Do you have any idea what caused your tubes to be blocked? I am wondering “has that always been blocked or is this a new thing?”. It doesn’t upset me to have them removed because I don’t mind how I conceive and my partner has poor sperm. I totally understand why it would upset someone though because it happened to my cousin and I was horrified about the idea of having a tube removed when she first said it but then realised it’s super common and helpful.
I asked my clinic directly how this wasn’t picked up before. They said they do check for fluid but it mustn’t have been present. I have been told it doesn’t always show up in scans. When they were removed my surgeon said judging by the state of them they had been like it for years. They couldn’t say what had caused it. I was angry at my first clinic as I do think it should’ve been picked up but couldn’t prove anything so had to accept it and move on. Xx
That's so frustrating!! I had HPV a few years back and I've googled and this can cause it so maybe this is why I have it.
I just read my notes from my very first scan and she wrote about a lesion on my fallopian tube and then she said "the location of the lesion within the tube is fibril". So I googled "lesion within fallopian tube" and hydrosalpinx came up!!! So now I am thinking "is this the same thing?" I am also wondering if I had a hycosy scan AFTER this and maybe that indicated that the tube wasn't blocked. I cannot wait for my consultation next week to discuss this and whether it's the same finding or not and if so why one dr is mentioning removing a tube but no one has thus far. I am wondering if actually it's since been proven to be fine because he said "get them to look into it if they haven't".
Good luck for your appointment next week, I hope you get some clarity and answers. Xx
hi everyone I can totally relate after a natural ectopic pregnancy and 4 failed IvF transfers I pushed for a MRI and I’ve been told my left tube is filled hydrosplaynix) however nobody else has picked this up, I have signed papers to remove it as I want to conceive, unsure why no ish else has picked this up - thinking to get a second opinion from a REccurent implantation failure clinic
My cousin was told both her tubes were blocked and to get her tubes removed. She didn't get her tubes removed she had surgery instead and then conceived naturally. If you aren't sure I think a second opinion is a good idea.
Hi lovely,
So sorry to hear about your recent events, sending kind thoughts your way.
I had hydrosalpinx on both sides (due to previous infection) and had both of my tubes removed before starting IVF due to the reasons your doctor stated. As far as I’m aware they’re not reversible, and we were told we wouldn’t qualify for NHS funding if I didn’t have my tubes removed as it reduced the likelihood of IVF working by 50%. We went private in the end as the wait was so long. We had 1x failed fresh round and 1x successful FET (currently a very sassy 16 month old!!)
I’ve posted previously asking for advice r.e the surgery so feel free to have a read of my posts of message me if you’d like to know any more. Best of luck in your journey ❤️ xx
I hope your ok? So hard when someone says it so casually and you think it can't be something else to deal with.
I had both my tubes removed 8 weeks ago due to hydrosalpinx in both I do have endometriosis though so kind of common I had IVF last year pregnant then miscarried went to go again changed clinic there was some questions but never got checked I then had a endometriosis appointment nhs and said she was surprised it hadn't been checked so I had the dye test and both were blocked and swollen and said that if I was to carry on with IVF it's best to remove them due to the toxic fluid killing of embryos difficult decision but I decided to remove them and hope I will be able to keep a pregnancy
Hello,
I am sorry to read that you have had a tough time.
I have hydrosalpinx in both tubes. I have endometriosis and very low amh. I am currently in my second cycle of ivf. We decided to go abroad for it so went to Spain. When looking at clinics abroad, they all said that the hydrosalpinx needed to be removed before embryo transfer because it is toxic to the embryo. Our first round of ivf failed sadly and I do think that hydrosalpinx had its part to play in that. My plan is to have 2 rounds of egg collection and have both my tubes removed. Then hopefully have embryo transfer. My consultant in Northern Ireland said that my left tube is badly damaged but that he could recover the right tube. The consultant at my ivf clinic said both have got to go because it can grow back.
Another consultant in NI had said to me after the first cycle failed that he would drain my fallopian tubes during egg collection. When I mentioned this to the clinics abroad, they said not a chance as it will grow back.
Wishing you all the best on your journey xx
Thanks for sharing this. It sounds like you’re really exploring your options and doing all you can to make this happen. I find it interesting and a touch annoying that there isn’t a general consensus on this stuff and that drs have so many varying opinions. So much of it feels like trial and error. I wish you the very very best!!
It is so annoying that there isn't a general consensus. I went for my first basal scan before I started treatment 11 days ago and the sonographer couldn't see the hydrosalpinx on my right hand side. On every other scan it has been there so I stupidly started to hope that it had gone. Fast forward a few days later and they found hematosalpinx which is blood on the fallopian tubes. The whole journey is just max.
Thank you so much, I wish you all the best too xx
I don’t think that’s stupid I think it’s understandable! I read yesterday that a hydrosalpinx won’t go away without medical intervention. I wish there was something we all could do to make everything in there perfect!
I wish so too ❤️ hopefully everything will work out for us! Thank you for your lovely words xx
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