Endo flare up from IVF meds? - Fertility Network UK

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Endo flare up from IVF meds?

Kirmie profile image
6 Replies

Hi there. I’m new to this site and new to IVF. We’ve just started our first cycle, on a long protocol, and currently on day 10 of down regulation, sniffing buserlin. I have my first monitoring scan in two days time. Last week after stopping the pill I had a breakthrough bleed and i had the most horrendous flare up of endometriosis pain I’ve ever had and it’s still lingering. I’m assuming it’s the change/explosion of hormones. Has anyone else experienced the same. I’m concerned the pain stress is going to negatively impact on our treatment.

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Kirmie profile image
Kirmie
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6 Replies
emmab178 profile image
emmab178

I had the most horrendous period after down reg, full on endo pains etc. I then felt a bit of endo pain on stims but got through it by thinking it wasn't for long and endo can fcuk off.

On a brighter note first round of icsi worked first time and my daughter is now 15 months and going for round 2 now. So two fingers up to endo from me.

Kirmie profile image
Kirmie in reply toemmab178

Thank you. Although not great it’s reassuring to know it can happen. It’s been so painful

emmab178 profile image
emmab178 in reply toKirmie

You are already day 10, you can do it x Do whatever you can to try and get through it. I found reflexology and getting massages really helpful. That and eating loads of icecream and having emotional outbursts at my other half. I also took time off work to just lay in bed with a hot water bottle.

Hopefully just your body reacting to you stopping the pill and will ease off. I found taking buserlin generally pretty awful for mood swings, sweats etc. This second time around I don't remember having much endo pain. Probably because I was too busy snapping at my husband (poor chap)

Kirmie profile image
Kirmie in reply toemmab178

Funny you say that, I’ve been looking at Reflexologists in the area.

I’ve found I’ve been absolutely shattered. I have been falling asleep on the sofa every night before 9pm!

I’m starting to feel a little better pain wise. Fingers crossed the next step doesn’t bring more. Thanks for your message.

DianeArnold profile image
DianeArnoldPartnerNurseFertility Network UK

Hi Kirmie. Not what you want at this time. It might settle down a bit, but not too long to go now, so hang on in there. Thinking of you. Diane

Lyn84 profile image
Lyn84

I will be starting this soon too and this what i have been dreading 🙈😟

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