Haemochromatosis & MC

[SweetBasil]

Hi all, I was diagnosed with haemochromatosis (hereditary blood disease where your body stores too much iron) after our first unsuccessful cycle which unfortunately ended in two miscarriages. I spoke to my haemo consultant who wasn't aware of any link between haemo and infertility/miscarriages, but reading up on it online, there seems to be a fair bit of anecdotal evidence which could suggest otherwise.

My iron levels are reducing through regular venesections and natural blood loss, but I'm wondering if there's anyone out there with haemo who have had similar problems ttc both naturally and through IVF? All success stories welcome too.

Thanks xx

[DianeArnold Partner Nurse Fertility Network UK]

Hi SweetBasil. Yes, I did have a lady with this condition, probably about 5 years ago. She had regular venosection to control it, and had to keep away from any foodstuffs containing things which could store in the joints, such as iron and vitamin C. However, she was put on a course of Clexane (heparin) while going through IVF, and during her "successful" pregnancy. I can't remember now, but she may have had soluble aspirin (low dose) too for a while. She had problems with her periods being intermittent, so needed IVF to control her hormones etc. Her joints were pretty well pain free during her pregnancy too.She had a healthy daughter. Obviously, I wish you well with this, and of course for success. Diane

[SweetBasil in reply to DianeArnold]

Hello, that's really interesting. We're starting our second cycle next month so I'll be sure to mention Clexane/aspirin. It's always Lovely to hear a story with a happy ending. Thank you x

[DianeArnold Partner Nurse Fertility Network UK in reply to SweetBasil]

Hi SweetBasil. Wishing you huge success with it all, i will be thinking of you. Diane

[Alice_W123]

You should ask your RE about it.

Some info about it here haemochromatosis.org.uk/faqs2/

P.S.: there are whole society, so it`d be better to ask them too.

P.P.S.: sorry that I didn`t give a direct answer for your question.

[SweetBasil in reply to Alice_W123]

Hi, I'll certainly ask our RE next month. Although when I informed the clinic of my diagnosis at Christmas, they didn't seem to know much about it. Thanks x