I wonder if anyone else has experienced this? I had a Merina coil fitted 5 years ago and have been having light but painful periods ever since, these seem to be getting more painful with each month that passes. Last October I found a lump in my abdomen on the right hand side which appeared to be getting larger. I went to my GP who said that they would send me for an ultra sound scan, after not hearing anything for over a month I phoned my GP to chase this up and it turned out that my GP had forgotten to refer me! My lump appeared to be much larger and I was becoming increasingly worried so asked to be referred privately. I then saw a general surgeon (as they thought that it might be a hernia), had a CT scan and then an MRI scan. This picked up two lumps (One being the one I had noticed), they thought that it might be a Sarcoma or a Haemotoma so I had an ultrasound guided biopsy. I had a very worrying Christmas (and a broke one after all that expense!!) and received the good news a couple of days after Christmas that it wasn't malignant but that it was endometriosis. I had an operation 6 weeks ago (laparotomy) to remove this and am waiting for my follow up appointment at the beginning of May. However over the past 3 weeks I have been in agonising pain, I've been back to the GP several times and they are going to refer me to a Gynocologist as my GP thinks that I may have had endo for quite some time and it wasn't until all the pieces were put together that I realise that this may be the case. (Sometimes have pain after intercourse, pain on and off over the month but worse the week before and during my period, sometimes breakthrough bleeding throughout the month, however have light periods - although this could be down to the Mirena Coil).
I am experiencing severe lower back pain, pains in my stomach, in my hip and down my thighs. I did have these symptoms before my operation but put them down to the lump that I was having removed. My GP thinks that I may have more endo deeper down (However as previously mentioned I have had CT, MRI and Ultrasound (I know that the CT picked up another lump which they weren't too concerned about at the time as I wasn't complaining of pain in that area). However would endo show up on these types of scans if it hadn't formed into a lump? My operation seems to have exacerbated all of my symptoms as i've never been in this much pain. Towards the end of the day my stomach seems so bloated and I can hardly walk due to the pain in my legs.
The GP examined me and explained that my operation wound has healed and the pain isn't associated with this, he had prescribed co codomol but these didn't work so I am now on Naproxin and Tramadol which are still not touching the pain at times, although have helped me sleep through the night.
I would be really grateful if anyone has experienced the same as me? Have you had abdominal wall endometriosis and then found other endometriosis too? Also can endometriosis (not formed in a lump) show on scans?