Abdominal wall endometriosis

Hey well I had a ct scan with iv contrast done a couple months bc I had microscopic hematuria which is blood in urine only seen under a microscope they wanted to look at my abdomen and pelvic areas for abnormalities, tumors, etc. Well they found a abnormalty growth in my subcutaneous fat and the appearance is suspicious for abdominal wall endometriosis I'm sure it's this big round knot that has been on the left side of my csection scar for years now won't know more til tomorrow when I go see my gyno but I have been complaining about it for years and all they would say is its scar tissue. I had 3 c sections. They symtoms from it so far is its sore and hot during my period I can feel it pull when I cough and I have lower back pain sometimes constantly and sometimes only when I bend over I have striking pain at the bottom of my back I cant wear tight pants either or anything near there it hurts it bad. I researched this and there isn't much on it I would love to know other people's experiences with this please


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1 Reply

  • Hi, I have exactly the same thing! Have been told it is extremely rare and not the norm from the average endometriosis. But it is just as painful.

    All my symptoms are the same as yours. I am currently trying to find a surgeon that can help in this field. Although there are many endometriosis specialists out there I can't seem to find one that has experience in 'abdominal' endometriosis.

    I see you put up this post 7 months ago, do you have any updates?


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