Hi everyone! Hoping someone can help me with this, I am at my wits end After my youngest son was born 3 years ago by c section, (I am 33 now) I have had a lump just to the side of my scar which used to become very sore when I had my period. My periods, which have always been heavy, became increasingly so, with me suffering from large clots, prolonged bleeding and such heavy flow that I sometimes couldn't leave the house without extra trousers, pants etc (this was on top of my "double protection" I have been back and forth to the docs over this time, on many many occasions, but have been told it was anything from ibs, to possible coeliac disease and all things in between. There was a stage where intercourse really hurt and I would bleed really heavily. Worried, i kept going back to my doc who finally referred me to see the gynae. The intercourse related problems had calmed down by the time I had my appointment, but the consultant said he would like to carry out a laparoscopy to check for endo. Of course, the first thing i did when i got home, was to jump online (good old google eh?!) and i was convinced i had found the answer! by this time, the lump had started to become sore in between my periods too. fast forward a few months (and about 5 cancelled lap appts by the hosp!) i finally had it done, and woke to the consultant telling me that no endo was found. I was so confused, and almost disappointed that i was back to square one of not knowing what was wrong with me! I was told to take femodene contraceptive pill back to back to alleviate the heavy periods (I have had strange black, clotty break throughs a few times while taking this) Anyway, the lump was getting increasingly painful and i went back to my doc who referred me to for an ultrasound where a small mass was discovered although they could not tell me what it was. I was then referred on to general surgery, where after they lost my appt referral, i finally seen a consultant who told me that she thought i had an incisional hernia, i asked about the possibility of endo again but was told no, it def seemed like a hernia. By this time, I was in so much pain, i had to visit A&E as i thought something was killing me from the inside, i was sent home with tramadol etc. I then had to wait for an mri scan, with the results coming back the other day that I have endometriosis in my abdominal wall!!!! The report also said that they would offer medication before surgery. I have bad flare ups, sometimes the lump is a bearable dull ache and other times it is simply excruciating. I have barely left the house in a fortnight, I keep a heat pack down my trousers 24/7 as it seems to help, i am popping pills like smarties and i dont think i have ever cried so much in my entire life!!! Has anyone had a similar experience? im waiting for my follow up appointment back at gynaecology, but im stressing myself silly in the meantime!!!
Thanks for reading this verrrrrrrrryyyyy long post and look forward to your replies