Hi all, I'm 37 with stage 4 endo, I'm very lucky and have a little girl who is 3 and we've been trying to conceive again for the last 2 years.
I had a lap in the summer which found that my endo was basically everywhere sticking everything together. After a 6 month course of prostap and livial, I had a second laparoscopy in February and the surgeon cleared my womb area, (adhesions all over, ovaries stuck to cups, cups stuck to wall, tubes stuck to wall, twisted tube and chocolate cyst in 1 of the ovaries). They were however unable to clear my abdominal cavity or rectum (further deposits discovered at lap number 2 which had not been identified at the first lap in the summer), due to the risk of rupturing the bowel.
I had my follow up with the consultant today,
(RANT 1 - it was not the consultant - he was on holiday, but his registrar!!!, a different person every time!!! Arrrrgghhhhh!!!!!).
Our plan is to try and conceive naturally over 3 months (no pressure then!)
If that fails to try 1-2 cycles of IVF, which we'll have to self fund,
Then dependent on the pain levels and whether we've completed our family (at 1 or hopefully 2) the surgeon is apparently recommending a pelvic clearance
For the last month I have been following the endo diet, I've lost 1/2 stone, had a ton of energy, had normal bowel movements (tmi?) and am hopeful that my pain is going to be less. I had my first ovulation pain since being on prostap a couple of weeks ago, and it was definitely worse than normal, sharp prolonged stabbing pains on and off all day on my left hand side. However my period seems to have made a return today and although I've felt nauseous and achy I haven't had the debilitating cramps that have left me curled up on the floor hyperventilating, or collapsed in the fetal position unable to dress my daughter! (Fingers crossed I'm still ok tomorrow).
I've read that NSAIDS can effect conception so if the pain is bad I'll be managing without mfenamic acid... (even though the registrar and my gp have both said they're fine to use!)
(If my periods returning, and not getting to see my registrar weren't emotional enough I've been helping to register the death and arrange the funeral of my grandfather-in-law today!)
I'd love to hear from you, if you've been on the endo diet, and especially if you were stage 4 and even more if you were recommended to have pelvic clearance. Did it help your pain?. Did you manage to concieve if trying?
Sorry for the long post and thanks for any support