Hi everyone, I just needed to share what has been happening, any ideas are appreciated at this point.
To cut a long story short I have endo but also chronic pelvic pain and neuropathic pain affecting my leg and also my mobility. I have been taking tramadol to manage my pain for 18 months, I have a manic 5 year old to look after also!
I was feeling strange last week, palpitations etc so went to GP on Friday, he took my blood pressure and said it was high and caused by tramadol. He told me to reduce to 1 a day over the weekend and go back in on Monday, said I was damaging my body. When I asked what to do for the pain in the meantime he said "do you want to have a stroke?" Obviously this scared me to death! I knew I would be in agony as I take them for a reason not just because I fancy it! I rang the surgery back and asked to speak to my usual GP and explained that I didn't know how I would manage with virtually no pain meds. I was told he was not available.
So I dropped them right down, obviously ended up in lots of pain and very anxious and ended up ringing the out of hours GP. He said I had no choice but to take them, just take absolute minimum and relax, the stress is doing more harm!
So here in am in bed, taking the bare minimum but can't leave the house, wondering how the hell I am going to do the school run in the morning and half term starts on Thursday.
Some gp's seem to have no concept of dealing with chronic pain. I am going to the pain clinic who prescribed pregablin but I had to stop because of migraines. I resent being treated like some kind of junkie because I knew I couldn't manage the pain without taking the tramadol this is different to not being able to manage without something when there is no reason for taking it.
I am really stressed after also last Monday seeing a gynae and deciding on a hysterectomy because my specialist endo gynae is off sick for the foreseeable future and I am in the midlands with no endo centre anywhere near.
i really need a pain specialist who knows about chronic pelvic pain. I now have 2 problems to deal with, the endo and the chronic pain. The endo is under control with prostap, thank god.
People see me walking down the street and think I must be fine, if only they knew I am only walking because of large amounts of meds!
It takes all of our strength just to get through the day sometimes I think we deserve a pat on the back for not falling apart, people do over far less,
Hope you are all having a pain free day xx
Does anyone have any experience of neuropathic pain?