Hi I am a 56 yr old newbie - was finally diagnosed with endometriosis after a failed attempt at radical hysterectomy due to bleeding polyps and ovarian cysts and fibroids.
When they opened me up I was full of endo wrapped up tightly in adhesions. They found my bowel was stuck to my womb and the endo had spread to my bladder and filled up any spaces that you are supposed to have. The gynae oncologist (oncologist because they didn't know what my bleeding lump was at first) said if she would have tried to take anything away she would have caused more damage and I could end up with a permanent colostomy bag.
She referred me to another gynae surgeon who did a hysteroscopy and removed most of the polyp. He also said that he couldn't take any endometriosis away in case he did more damage inside due to my 'frozen pelvis'.
In November I had bleeding again and after a scan they found a chocolate ovarian cyst; my doc said that the gynae team had contacted her after scanning it and said that they would not open me up again unless it was a definite cancer scare and that hopefully the cyst would disperse on its own.
I have always been in serious pain with my periods before the menopause, pelvis, groin, bowel, & bladder for years - am infertile probably because of my endometriosis and adhesions but no-one wants to treat me. Surely they cannot leave me like this? Is anyone else out there like me?