I have been reading a lot on these boards and the support is wonderful. I recently went to see a new gynae. This was at UCL Hospital's endometriosis clinic. They are renowned and have specialised experience in this condition. I was previously with a different hospital and had a lap - endo removed, except on the bladder.
I originally went to the doctor because I had bladder issues. I was getting stress incontinence despite the fact that I am a (now) 45 year old who has never had kids and there didn't seem to be a reason for the bladder problems. I was sent to a continence nurse. At the same time I started developing pain with bowel movements. This was diagnosed as IBS and I was given buscopan. The continence nurse was lovely, but couldn't work out what was wrong as the pelvic floor was ok and the bladder seemed to be working fine. She was the one who started noticing that the problems were running with my cycle. Long story short, I was finally diagnosed, referred and had the lap. I was then given a mirena coil and extra progesterone when the constant bleeding wouldn't stop.
The problems have been escalating again and I wasn't happy with the care I was getting from the previous gynae, so I asked for a new referral. The new guy is a specialist in endo, at the endo clinic and he is also a specialist in Urogynaecology, so I figured this is the right person for me to see.
So the new gynae says: "you have endometriosis, you have bladder problems, and you have legs. The three things are not related to each other." I said that the bladder problems go hand-in-hand with my cycle and the other pain and swelling and he said it could be hormonal, but doesn't have anything to do with the endo. And yet, I have endo on my bladder. They now want to arrange another lap, but first want to do 3 months of Zoladex injections. I am ABSOLUTELY TERRIFIED of this and don't want the injections to the point where I would rather suffer. They will not listen to this. I have a terrible situation at work and I am managing not to assault my boss by sheer will-power (ok, I know that sounds melodramatic, but it is very stressful). I don't think I will be able to hold things in check if I also have to deal with massive mood swings brought about by hormones. I can't afford to lose my job. I know health is more important than work, but I need to eat and pay rent.
So, I guess my questions are:
Does anyone else have similar bladder issues? I keep needing to go and then it doesn't seem to empty properly, or fills up again quickly. I get stress incontinence - but only around my period.
Have you been told it is not endo related - if so, what on earth can it be?
What do I do about the Zoladex issue?
And I am so upset about the fact that if it isn't endo related, does that mean the gp could have sorted the bladder issues out long ago and I didn't have to spend two years wearing tena pads? I am so down I just can't stop crying!