Hi, I am 33. Last April (2011), I received laproscopic surgery for endometriosis. I had a 5cm cyst on my ovary and everything down there was so stuck down that they couldn't even see my fallopian tubes. I was also diagnosed with infiltrating endometriosis, which basically means it is in my bowel too. To cut a long, terrifying story short.... a hole left unstitched in my bowel resulted in my bowel rupturing after I had been sent home from hospital post surgery. My experiences of previous pain with endo paled into insignificance at that point!! Further complications as a result of septicaemia (blood infection) - collapsed lung, intensive care, burst wound etc etc have resulted in a very scarred body and a colostomy bag. I wont lie I was devastated to wake up and find a bag attached to me and it took a tremendous amount of will power to even watch it being changed by the wonderful stoma nurses. However, within a couple of months I realised that it really isn't that bad. The main initial problem was finding the right type of bag that didn't leak and suited my lifestyle requirements. My daily routine, involves a shower without the bag each morning, attach a new bag and off I go.... That is it! I have had to make some adjustments - wear bigger knickers to support the bag when it starts to fill, buy a bigger handbag with a secret compartment to stash spares in (the hospital supplied me with a radar key which means I can use the disabled toilets anywhere for changing) and wear clothing that will allow for some flexibility where the bag sits. I can even go swimming although I was super paranoid! Don't get me wrong it is not perfect and I still have occasional leaks and noises but what I am trying to share is that a colostomy does not have to be the end of the world! I could talk for hours but the blog instructions said to be brief!?!? If you want to ask any questions, I am more than happy to answer them! I am booked in for a reversal next Tuesday, where my gynae is also coming along to assess progress with my endo since the rupture. Fingers crossed my story will finish with children and pain free living - the happy ending that I desire!! I wish you all luck with your journeys and reading others experiences and success stories really inspires me to stay optimistic that there is life after endo! x
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