Endo with the bowel

Hi guys, newbie here. I had my first endo specialist appointment last week after having a diagnostic laparoscopy in April. Essentially I was told that it was worse than I had been told originally and that it may have spread to my bowel. My gynae told me that may have to have a part of my bowel removed during my excision surgery (30% chance) and a temporary colostomy bag put in. Has anyone else ever had this? I'm really scared about the whole thing and reassurance would be great if anyone has any! x

6 Replies

I had endo that had affected my bowel and was told similar to you but the surgeon wouldn't know the extent of damage until he looked surgically. I was having a hysterectomy as well. I had my surgeon and a bowel surgeon perform the op and they found the endo had infiltrated by bowel worse than expected and I had a complete section of bowel removed. No colostomy no complications, just a bigger wound than expected and a quick uncomplicated recovery. A year later life is much better my bowel can cause me a bit of bother but nothing too bad. Be positive xx

Thank you. That's made me feel better about it all :) xx

hey tracey 29 how long was your recovery for hysterectomy and a section of your bowel removed I'm having that surgery in 2 weeks and I'm craping my self

I had endo in my bowels too. I had a bowel surgeon create a tempt stoma to allow my bowels to recover. Its alot to take in and digest at 1st but i only had to have it for 12wks. The stoma nurses were all lovely and i soon adapted. Now after the reversal i can be a mum and wife which outweighs having to have the stoma. And best of all im pain free. Best of luck to u x

I think that's part of the problem is it's so much unknown and a lot to take in! But your story has made me feel better, so thank you! Keeping my fingers crossed though xx

hi Laura did you have your kids before or after your bowel surgery? and was you treated at a BSGE centre or general hospital?

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