Decidual Cast : Hi, I recently went back... - Endometriosis UK

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Decidual Cast

chocandcheese01 profile image
3 Replies

Hi,

I recently went back to the doctors in an attempt to sort my endo related issues, was put on a pill to help reduce flow, symptoms. I ended up 7hours in a&e and passed my endometrium. I was in so much pain & was beyond shocked to see I’ve passed grey matter the size of the palm of my hand! None of the initial doctors knew what it was, kept asking if I was pregnant! As a virgin this was laughable but frustrating as this clearly wasn’t the case. Since I’ve had a scan however yet to await results. I’m anxious they’ll suggest coil or ask me what i actually want from my doctors appointment soon. I just want to understand why and how bad this is getting because I cannot live like this. I’m almost 23 and refuse to let it keep ruining my life.

Has anyone got any advice on what I should now ask the doctor to help me with, pills do not seem to work.

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chocandcheese01
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3 Replies
HPFanPJFan profile image
HPFanPJFan

Hi, I've recently been started on the injection to stop my periods for symptom relief and my periods have only gotten worse. I also passed that strange tissue and it was the second worst pain I've felt in my life (a ruptured ovarian cyst being the first).

Also a virgin and repeatedly asked if I was just having a miscarriage (hate the word just, their words not mine).

I think I'm going to end up with a coil i don't want.

If the pill isn't working for you, could you try the injection? It may work better for your body.

chocandcheese01 profile image
chocandcheese01 in reply toHPFanPJFan

Sorry to hear that I completely understand your pain. I never knew injections could be a possibility I will definitely discuss this with the doctor. I’m dreading the thought of the coil, did you experience any side effects with the injections?

HPFanPJFan profile image
HPFanPJFan in reply tochocandcheese01

I've had 2 so far and my periods have gotten longer and heavier (which increases the pain) but as with all the methods I've been told to give it more time. My GP gave me extra progesterone tablets during the long periods to stop them.

It's 1 injection every 3 moths and it's the same hormone that's in the pill and the coil. They just don't like offering it because it's more expensive.

Definitely worth an ask though, I'm gonna give it another injection before subbmitting to the coil.

I hope you get some relief soon!

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