First lap with a BSGE surgeon - still in pain

[Wildfire_]

So this is my first lap and I’ve been diagnosed with widespread endometriosis. Quite a lot was done in my lap, all visible endometriosis was excised apparently and a couple of organs were unstuck on the left hand side.

prior to my lap I had severe pain and symptoms. My whole pelvis felt full, swollen and inflamed. The pain was always worse on the left hand side and they found endometriosis all over my uterosacral ligaments, pouch of Douglas etc.

I am 2 weeks post lap and have not had this miraculous experience that I see others talk about on the Nancy Nook group where they wake up totally pain free and knew the endo had gone.

I am still in a lot of pain, worse on my left side just like before the lap. My report says all visible endometriosis excised so I don’t know if this is normal?

My bladder is still not functioning properly. I still have gut issues. I don’t feel all that much different to prior to the surgery. Is there still hope that things will improve? I don’t know what’s normal.

[Tangoandmax]

Hi Wildfire, I’d say it’s much too soon to expect to see any significant improvement, you’re very much still healing at this stage. Sounds like you’ve had a bit done too meaning the healing will take longer. I’ve read a lot of bad stuff about Nancys Nook (I’m not on Facebook so haven’t been on myself) so I’d take it with a pinch of salt.

I had my first op 1st august with a BSGE specialist. I had DIE removed and organs detached from one another also. They told me to give it plenty of time I think around the six week mark I started to see progress, however my symptoms have persisted since and I now have a clinic appointment beginning of December. I also have adenomyosis which I’ve put this down to, have you been checked for this? Surgery is only a success for 8/10 people, I, like you (by the sounds of it) went in assuming I would come out completely fixed but unfortunately that hasn’t been the case. It’s incredibly frustrating but it’s so early for you. Keep resting and give yourself time. It’s hard to differentiate between healing pain and pain from endo so early after surgery and it’s incredibly hard to be patient but your body has been through a lot. Try not to worry just yet xx

[JOSANDY40 in reply to Tangoandmax]

My several laps over yrs only gave short-term relief from 2mths after the lap. Mostly a half improvement for upto a yr. Staying on the Zoladex helped more longterm. Unfortunately I am well bedded down now after 6 of these types of Ops. The bowel has become ridged so there's new issues there with digestion and emptying, the need for easier foods to eat, soluble fibre. Colitis and Diverticulitis.Things for you will improve once the inflammation and healing is better.

x

[Mhol752]

hey, I had superficial widespread peritoneal endometriosis diagnosed and excised in July and I’m currently on my second hospital admission due to endometriosis pain. Unfortunately surgery doesn’t always take away the pain, but fingers crossed it’s just you’re still healing x