Endometrial Ablation / Endo / Help!!!!!! - Endometriosis UK

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Endometrial Ablation / Endo / Help!!!!!!

JH21 profile image
JH21
3 Replies

Help!!

Contraceptive pill for 10 years plus…

2 babies 2011 & 2014

lap 2021 prostap until 2022

Ovaries & tubes removed 2022

Hysteroscopy 2024

Endometrial Ablation 4 weeks post op.

There has to be more to life than this?!?

last surgery has really taken it out of me. Don’t bleed much after, just a lot of watery discharge.

Pain had started easing and I had started to feel better…. Last night the pain increased a lot and today I’ve been bleeding fresh red blood on and off all day!

what?!?!? Why? Anyone?

The endo flare ups are stronger, more frequent!

Honestly anything at this point, advice, recommendations ? If not a gun?

I’m struggling to find any positives anymore!

I don’t see my specialist for another 2 weeks….

I just feel done!!

sorry for the vent !!!

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JH21 profile image
JH21
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Joonaspryte profile image
Joonaspryte

I’m not sure what to say, I’m sorry you are having to go through this.

Your not alone feeling like this, many on here seem to.

I myself had had three c sections,

1st 1982

2nd 1989

3rd 2006

Then bilateral salpingo and left ovary in 2008

Then total hysterectomy and right ovary 2009

Gallbladder removal 2008

Appendectomy October 2023

Umbilical herniorrhaphy November 2023

I’ve also had laparoscopies, but these were pre hysterectomy so many years ago.

And now 16 years of hysterectomy I’ve being diagnosed with severe extra pelvic endo, with signs of thoracic endometriosis.

No one had ever even mentioned that before, although there was adenomyosis.

It’s horrible and friends and family must think I’m forever ill 😷

I’m totally sick of it.

Just keep coming on here and venting, asking questions and generally getting support from those who know where your coming from.

Hugs🤗

JH21 profile image
JH21 in reply to Joonaspryte

Oo yeah my gall bladder has gone too!

I feel I’m forever venting !

Don’t get me wrong, I’ve got private medical, I have a fantastic specialist…. I know there’s people much much worse than me .

But jeez girl just needs a break now and then ! 😢

Joonaspryte profile image
Joonaspryte in reply to JH21

Yeah I know, I’m 58 now, when’s it gonna end lol

I’ve been diagnosed and everything, but my gynaecologist hasn’t referred me to a endo specialist yet, she seems to want to manage it herself. Not really happy about that, I even asked my gp to refer me, but she said it’s up to the gynaecologist.

I’ve been reading the nice guidelines and it says those with suspected endo or diagnosed endo have a right to have access to a specialist.

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