Endometriosis help! Upper body endo and prostap injections

[Hfbo]

Hi all, just after some advice or if anyone has been though something similar, I would love to hear your story.

I'm nearly 40, and first got diagnosed with endometriosis in my early 20s. A few surgeries, 1 ectopic pregnancy and 2 children later have had very few symptoms (yeyy). After I had a coil fitted I have had very little symptoms and bleeding (highly recommend!)

Just over a year ago I went to see my GP with a pain just under my ribs. I have seen a heart specialist, chest specialist and gastro specialist who couldn't find anything. Only thing that flagged up was a liaison where my stomach joins my esophagus (exactly where the pain is)

Gp's and specialists all stumped as what could be the root cause.

One Gp asked about my medical history and mentioned it could be endometriosis that had spread to my diaphragm/stomach.

Went to see a private specialist who advised this could be the case, and has recommended X3 months of prostap injections, the first one being just over 2 weeks ago. Aware of the side effects (hot flushes etc) but would literally try anything at this point. And following the injections if things calmed down it would mean it was more then likely endo and would have surgery

The past week has been awful, the pressure/pain is unbelievable. I can't sleep/eat/stop crying. Did some research and for some prostap can make endo symptoms worse for a few weeks before they kick in.

Has anyone else her had endo on their stomach/diaphragm lungs?

If so, what did it feel like? Mine is so much pressure, like I can't breath/move

And what's your experience with prostap injections, did they help?

Also I'm having the worst headaches and my heart keeps pounding like crazy

Thankyou to anyone that has got this far!!

[Summerlol]

Hi,

I think I also have endo in my diaphragm area. I noticed it when I would get my period pains an awful pain in that area too. I am now perimenopausal and haven’t had a period for a while so it has settled but it’s scary that it can move that far. Will it not show up on any scan? I’m sure it can’t be removed from this area either. Sorry your going through this

[Galaswan2121]

I feel the same I haven’t got endo confirmation through surgery yet but for over 3 year I get horrendous pain u see my right rib always starts about ovulation time and is so painful sometimes! I think I have it on my diaphragm I’ve had scans etc and nothing shows on mine! Also have problems with my bowels think it’s on there too. Hope y oh get sorted

[Chad8talya]

Hi, I had similar issues too you regarding pain. I am going through the change and told this gets magnified when your hormones are all over the place

I was out in 3 months prostap injections.

Honestly, my pain went away after 3 weeks in

But the hot flushes were awful and very emotional the first month

I recommend as the pain eased massively.

However I have been off now two months nervous about flare up again

But so far so good

Good luck

[Hfbo]

Thankyou ladies for taking the time to comment, half the battle is just knowing you are not alone and others are having similar experiences

Endo is such a s£+?*y thing to have, and wish you all the very best of luck with treatment and medication