Advice on prostap injection

[Beki2244]

Hey I am after some advice any advice anyone could give would be helpful.. I was diagnosed with PMDD alongside PMDD I started with a pain in my ovary and after seeing a consultant he wants me to start the prostap injection to make sure the pain is hormonal... when I look at the side-effects I’m worried I’m 30 years old and don’t want to go through the side-effects of the menopause can anyone tell me and share their experience of the prostap injection.. many many thanks in advance

[Leycriss]

They just scared you to be honest i did had 5 of then, and so far of little bit of headache and hot flashing, nothing else, also it has been my first 5 months of my life without pain, no trouble at all with this treatment i go back to work and do exercise increíble how good has been that treatment, now just waiting for my period and next month the appointment with the specialist..... I can't wait for it... Super happy..

[Beki2244 in reply to Leycriss]

Thank you so much for this information I really appreciate your experience with the prostap

[tt786]

Hi. Side effects can vary person to person. Mine were next to nothing, it was heavenly to not be sofa bound because of my endometriosis.The side effects I had were slight achiness all over body and couple of hot flashes a night, nothing that kept me up though. That's it!

[Beki2244 in reply to tt786]

Thank you so much for that I literally have my phone call in an hour to tell the doctor my decision and I think you have cleared a few things up for me I really appreciate that x

[Kris_23]

Hi 🙋🏻‍♀️ I have the injections but on a monthly basis as I was scared to have the 3 month one in case I had bad side effects. These injections I have had periods has been painful, I have been told it should stop soon ! I hope. I am having these injections to shrink the Fibroids & Endometriosis. I have not no hot 🥵 flushes at all. I have had aching legs 🦵 sometimes aching in my pelvis and stomach & body feel weak. Headaches & sometimes sickly feeling. I would say rest let the injection take it’s cause. Gradually build up again. Eventually you will feel yourself again. I know it’s scary 😟 it took me a month to decide as to side effects. But yes do have it 👍🏼 as it is does help with heavy periods. All the best ❤️ xx

[Beki2244 in reply to Kris_23]

Thank you for sharing your experience with the injection any advice i am so grateful for.. I feel quite deflated that women have to go through these things that bad anyway but when you have complications it’s 10 times worse.. due to Covid I still haven’t had the injection but I am pushing for it in Covid times because I believe that it’s worth a try regardless of this side-effects.. if I couldn’t handle the side-effects and obviously I just would not take the next injection but I don’t know whether you felt like your periods we’re getting worse month by month before you took the injection x

[Kris_23 in reply to Beki2244]

Beki2244 😊 you must definitely have the injections as it does help with the period pain. Yes my period pain were extremely bad that I ended up having Fibroid & Endometriosis. Now waiting for an Operation. But having these injections to shrink and stop bleeding.

Honestly the thought of have Prostap Injections reading the side effects! Put me off. Once you start yes you feel it but at least it help with pain and bleeding. Hot Water Bottle is my BRST FRIEND 😆😆😆 helps a lot xx

You should push for the injections as should not take this long for consultant to give you a date. It’s the Nurse who gives. Consultant or Doctor only prescribe it.

[Beki2244 in reply to Kris_23]

Oh yes the list of side effects did completely put me off so it took quite a bit of convincing.. but after this last month I thought anything is better than this... well the consultants office sent my covering letter of the postop to a different doctors than mine so it’s taken a while to get it to the right doctors but fingers crossed this week it will happen... I hope you don’t mind me asking but when you get pain where do you get pain? And does fibroids and endometriosis run in your family? Or is this not and hereditary illness ? X

[Kris_23 in reply to Beki2244]

my pain felt feels like hot knives stabbing through me, like something twisting and stretching my tubes in my pelvis. My stomach felt bloated and painful and back pains, sometimes my legs ache badly. My mum and sister had same problems and they both had Hysterectomy. Mine only occurred last 6 months. I was waiting for a simple Ablation! No Fibroids or Endometriosis. Due to Covid and lack of Hospital Admin error they forgot about my Appt. My condition got worse and I followed it up again.

So pls whatever happens aways keep track and keep calling the hospital or GP. As for hereditary illness I’m not sure. It could be ? Maybe??

[Nedthestaffie]

Hi there Beki I'm new to the forum and also have PMDD. I don't actually have endometriosis but the PMDD is really severe where it's making my pre existing mental health issues much worse....i got a consultation with a gynocologist after waiting a year who started me on Zoladex injections and Tibolone HRT to reduce side effects (I'm 46). I had my 3rd injection this morning and i have to say, they seem to be helping my mood a lot. Unfortunately i get constant headaches and feel nausea frequently, but i already had problems with migraines. So far i am happy with treatment as its amazing not feeling suicidal during pmdd episodes. Its also a relief to not get periods and the cramps that go along with them. I'm scheduled for a bilateral oophechtomy in May where my ovaries and fallopian tubes will be removed. Its been easier for me to make these decisions because of my age and not wanting children but it must be more difficult for you with your young age. For me PMDD has only gotten worse with age and i wish i had been diagnosed sooner. Wishing you the besr of luck whatever you decide xx

[Beki2244]

im so thankful for your message i have never known someone with PMDD before and that alone is quite a sad feeling there is no one to relate to at all.. i was advised to go on to the combined pill to help but with me also having migraines they wouldnt let me try i bet you had the same thing.. im so glad your sharing that you take a similar medication to help with the PMDD as i was unsure if that would be helped by the prostap but i am so thankful i no know that it is going to help... yes i was told by my gyne to 'plan my life' because the end result is hysterectomy but like you say with my age i am totally unsure about more children.. i have one and if i was single my choice would be to go ahead and have the surgery but my partner doesnt have any and i dont want to take the choice away from him... its a touch call on everything when the outcome doesnt just effect you... i honestly am so grateful you commented like i say iv never met anyone before with PMDD and it is a relief to actully talk to someone who also has it.. and also when you said you find yours has got worse with age i feel like that is something that is happening every month and it scares me.. when i have to pre warn people around me its that time i use the phrase 'my fake feelings are here' because the way i treat people the way i think and act just isnt how i truly feel its an actually awful thing to go through.. thank you for your reply... much love x