Pain Management: I am not yet diagnosed... - Endometriosis UK

Endometriosis UK

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Pain Management

BlossomsBloom profile image
9 Replies

I am not yet diagnosed with Endo but waiting some tests. My period pains are becoming more and more unmanageable with the prescriptions pain meds I have.

Currently I will take Codeine, Naproxen and Paracetamol to their fullest dosage but sometimes it doesn’t relieve me of pain or at least not for long and I have no more pain meds in the house I can take. So I have to ride through it with hot water bottles, hot baths etc

Are there any other pain killers that people have been prescribed that are more successful/stronger than Codeine and Naproxen? I was laying there in pain genuinely feeling that morphine would be the only thing to put me out my misery. Interested to know what other pain killers are out there?

Also I have seen MYOOVI being advertised a lot recently, has anyone had any success with this and is it worth getting?

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BlossomsBloom profile image
BlossomsBloom
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9 Replies
Sara0102 profile image
Sara0102

hi hun what tests r u having u am in the same boat as you.. I have suspected endo and I am due on soon and I am bed bound..

BlossomsBloom profile image
BlossomsBloom in reply to Sara0102

Hiya, the GP has referred me to the hospital for get a laparoscopy. However I am considering going private as I have heard the waiting list is so long and my symptoms are getting so bad. I also had an ultrasound quite a while ago but all was clear. I’ve seen people who have had MRIs which I didn’t know was an option til joining this forum! What tests are you waiting for?

Sara0102 profile image
Sara0102 in reply to BlossomsBloom

I’m waiting for a 60 minute ultrasound done by the endo specialist where they closely look for endometriosis only

Previous normal uss showed a hydrosalpinx only

Hun what are ur pain symptoms and do I have pain when ur not on ur periods or when u r due on??? I can’t focus anymore it’s making me feel suicidal

Kaita16 profile image
Kaita16

what dose of codeine and naproxen are you on? Like how many mg? There are a few different doses so your GP can sometimes give you higher. If you are really desperate you can always go to A&E and they can give you IV stuff including morphine. You could also look into pain modulator drugs like Amitryptyline with your GP. In terms of myOovi, I know lots of people who have had success with it and it is very discreet. However it is just a tens machine, nothing unique about the technology so totally up to you if you think the price is worth it, as you can get TENS much cheaper. To potentially hurry up your referral, you can ask your GP to write a letter to your surgeon saying that your symptoms are worsening, doesn’t always help but worth a try. Hope that helps! :)

OlgaSz profile image
OlgaSz

I am really sorry to hear that you are suffering. There are 2 things that I heavily rely on for pain management: TENS machine ( I got mine for £25 on Amazon) and daily decaf green tea with powdered ginger (according to research it reduces menstrual pain from day one and the longer you drink it the more manageable the pain. I swear by it!). I also do 30 minutes of yoga each day to stretch the scars that form during the menstruation. I used to take naproxen, ibuprofen, paracetamol and codeine. Most of the times they only took the edge of the pain and I still lied in bed in agony. Now I am fully meds free and I am hardly ever bed bound due to pain.

I hope this helps!

JOSANDY40 profile image
JOSANDY40

Oh dear, I feel for you but it's the same with most longterm sufferers of chronic pain myself included with a serious form of Endometriosis in many areas of my trunk.Morphine might work on and off but my experience is it will be the same as other painkillers. Some days are better than others. I found that a few days with one, then a few days with others, often breakthrough pain. Morphine patches I found helpful but not any better. Then there's addiction if your not careful.

You need to get your condition verified. There are several illnesses that cause the same symptoms.

What is important is to reduce inflammation. Anti inflammatory painkillers, other things to stop inflammation. Changing diet, removing hard to digest foods like, sweetcorn, nuts, foods containing Histamines like melon, advocdo. Gluten in many foods, yeast products like beer, fizzy drinks, increasing water. Then take Fennel Tea for stomach cramps and belladona when nothing else works. The TENS machine my god send but it takes time to set it up correctly. (Read my other replies).

Cut the inflammation in your body to reduce pain. Oh and Antihaistmes.

KernowickSewist profile image
KernowickSewist in reply to JOSANDY40

Hi what is the link with histamines? Thank you

LawsTra profile image
LawsTra

Hi there,

I would speak with GP and ask if you could try Diclofenic suppositories which anti-inflammatory medication. this are gently pushed into your anus (bottom) . These will melt inside your anus and usually faster acting than tablets swallowed as the absorb into the bloodstream.

I have used these for several years and found them very effective.

You can use 2 or 3 a day and the dosage will be determined by GP.

You can find details on NHS website.

Good luck

For some people tramadol works better than Codeine, you could also look into nerve blockers

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