Experiences with

Thrombosis

Hi there, after some advice as on fri 14th march went to appointment with gastro team as i havent seen anyone since i was admitted to hospital in November 2023 with the diagnosis of portal vein thrombosis after a short stay.

For example, is it safe to live at altitude (7,000 feet) or does that increase risk of thrombosis for those with PV? By extension stroke risks are certainly enhanced when traveling by plane. I have definitely travelled by plane plenty since I was diagnosed.

The IVC appears to be decompressed along with possible portal vein thrombosis. Further workup with ultrasound in this area is recommended.

Arterial thrombosis (93.8%) predominated. Median overall survival was 103.6 months (95% CI 68.8–138.4). Median thrombosis-free survival was 86 months (95% CI 68.4–103.6).

Has anyone had Roascea flair ups with Essential Thrombosis and other itching burning and tingling in the arms?

does anyone else get this?

I’m a 62-year-old single female, and while I’m excited for the adventure, I also have some concerns about managing my essential thrombosis (MPN) while abroad.

I’m a 62-year-old single female, and while I’m excited for the adventure, I also have some concerns about managing my essential thrombosis (MPN) while abroad.

Having scope on Monday and we were told today that he has portal vein thrombosis. I understand what that is but I’m confused after doing some research as to the difference between portal vein thrombosis and portal vein hypertension? Or are they the same thing? thank you

No one can tell me my personalized risk of thrombosis with platelets between 450-600. Any thoughts?

I thought they would have gone much more by now but he is also on blood thinners because he has portal vein thrombosis. Do the blood thinners keep platelets low? Or does it take a very long time, if ever, for platelets to go back up? Thanks

Stating my concern over those numbers, she tells me that white cell count doesn’t correlate with increased thrombosis risk. That was news to me. To address my concern she says to add 1 extra hydroxy a week. See you in 3 months. So my question is ‘ does this sound right to you guys?’ Thanks.

Non-massive PE, low risk, no leg swelling, no deep vein thrombosis, all veins on ultrasound are clear. They don’t know the cause of thrombosis Got released from hospital 3 days ago, was put on apiksaban 2 x 5 mg.

Has anyone heard recently of medics raising the danger of taking otcs regularly when on Anticoagulants, sometimes causing death from Pulmonary Embolisms or Deep Vein Thrombosis?

The conclusion is that a thrombosis was the most likely cause of death. I thought some of you might be interested to listen to this . Also very heartened that all these people have worked pro bono on this . They have obviously put in a lot work on this.

She bruises easily and is on blood thinners due to deep vein thrombosis previously. She has had a recent flare up of PMR but a few days on steroids prednisone has sorted it (5mg)

good morning, just to let use know I had my liver scan and got results early, so was told am now compensated from decompensated which is great and apperently have been for months because am not yellow and ascites have gone 🤷‍♀️ meld score down to 12, so all is good news, am done with google I honestly

I am CHR, with no prior thrombosis. Thank you in advance for your feedback.

And it may heighten the risk of thrombosis, though more studies are needed. I take apixaban because of my risk(and fear) of stroke due to AF/AFIB. We don't need the risk of another chemical with potential ability to clot blood.

In your experience, which of the two poses less risk in terms of heart issues, thrombosis, infection, etc. ? Thanks Xx