Hazy & not myself: I keep feeling not right... - Endometriosis UK

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Hazy & not myself

Faylen34 profile image
7 Replies

I keep feeling not right and I can't explain it. I don't know if it's related to constant blood loss (I've bled daily for 5 months) and low blood pressure or just the level of pain all day affecting me right now from my endometriosis/endometrioma cysts. Example is this morning I'm in a lot of pain and feel just deflated but then I'm shaky, need fresh air and feel in a bit of a daze/hazy like I could pass out and can't function.

Does anyone else feel like this or perhaps its anxiety who knows. I just sick of not feeling like myself and being unwell seems to be my life. I'm usually quite a quick on the ball person I carry a lot of responsibility but I just can't function. I don't know how to make myself feel better.

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Faylen34 profile image
Faylen34
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7 Replies
moonghost profile image
moonghost

Bleeding every day is horrendous, I’m sorry you’re going through it. If you’re bleeding every day and haven’t been taking iron supplements, you could be dealing with low iron. The dizziness really sounds like it, getting black spots or feeling faint when standing/sitting and low blood pressure sounds like your iron is low. Recently I was feeling just awful and it turned out my iron was 5mcg/L. That’s when there isn’t any iron left even in your bone marrow.

Started taking 200mg iron (with orange juice, on an empty stomach!) and things rapidly improved.

Sunset-lady profile image
Sunset-lady

Yeah this sounds like me when I have chronic anaemia. You may need an iron infusion. Ring your GP and book an appointment. In the meantime take iron supplements but also eat lots of apples and lots of celery. My body craves these two things when I'm anaemic as it's nature's way of reversing it. Celery has vitamin k which helps to clot blood. Get some tranexamic acid to give you some respite. I've been on and off anaemic for 2 years and it awful. You feel like you're spaced out and living life behind a glass pane. It's the weirdest sensation. Make sure your diet supports you. It can take up to 4 weeks to start feeling better. You may need a gentle laxative (vitamin C too) as it can make you constipated. Don't suffer in silence xxx

Lily1986 profile image
Lily1986

I totally understand and relate to this frequent feeling.

my only explanation is it’s the body’s reaction to dealing with the inflammation, progression and damage caused by the disease.

It’s thoroughly unpleasant.

Best wishes to you ❤️

Fulham85 profile image
Fulham85

You could be low on iron as that happened to me because of constant bleeding. Go to gp and have a blood test then you will be prescribed iron tablets . Hope this helps x

Faylen34 profile image
Faylen34

Thanks everyone for the replies. Early February I had a blood test and was severely deficient in vitamin D and vitamin B12. I had 2 weeks of b12 injections and I'm on a prescribed type of vitamin D that is supposed to be absorbed quicker. They said my iron was borderline low at the time but I had no action on it - I will speak with GP and see if I can have another count done as it may have worsened. Its happened again today I was okayish, in pain but managing it with pain relief, then just went unsteady felt like I couldnt see, tingling in my fingers and had to go lie down - so horrible!

Reena_123 profile image
Reena_123

hiya,

I feel the same dazy like a dream , like I am sleeping lack of concentration. Especially around when I am on my periods.

Scoutybob profile image
Scoutybob

100% get this! And it seems to be progressing more and more (stage 4 endo and on bowel etc). So this month, today was the first day where I've felt myself and 'the cloud has lifted' as my husband calls it. This has been two weeks of the haze, fog, literally feeling like a different person. During this time my mood goes very low as well and I just can't think straight so every tiny thing feels huge. Anxiety increases significantly. It's just horrible.

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