Hey, has anyone actually felt better after having a laparoscopy for their endometriosis? I need some positive outcomes please as I am terrified. All I ever see is that people feel worse after their laparoscopy. I’m waiting for a date to have a lap privately and I’m scared that I will be making my self even more unwell if I go through with it. My surgeon says that surgery does not make endometriosis worse but after looking at this forum and Instagram I’m very worried.
I would really appreciate if you could send over positive examples of your experience after surgery please?
Or if anyone knows where I can find positive stories from people after they have had their laparoscopy please could you point me in the right direction?
thank you so much!
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Imissdairy25
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I'm 4 weeks post a 5hour laparoscopy which removed a lot of endometriosis. Since I came round I've not even taken a paracetamol! My whole life is changed...I can bend, twist, move so much more freely and other than recovery soreness internally my previous pain is all but gone.I feel 20 years younger (I'm 46).
I'm having the same experience - terrified whilst waiting and only hearing horror stories! My therapist gave me a hopeful theory: Most people won't turn to the Internet in times of triumph. If our surgeries go incredibly well, we might not need to head back to forums for advice, reassurance, and connection.
(Example: someone who had a horrible restaurant experience will leave a bad review, while someone who simply had a nice time will never post a review)
I’m sorry to hear that you are in the same position as me. Thank you so much for sharing that with me. It’s such a good point. This will be why I can’t find any information about positive experiences people have had. I really appreciate that you replied.
Hi, having a laparoscopy coupled with the Mirena coil insertion and cutting out gluten definately changed my life for the better. My energy levels beforehand were so low because of dealing with the pain i was depressed and it felt like gravity was turned up to eleven. They lasered away the endometriosis and unstuck adhesions which were causing a large amount of pain. Also after recovery I could have sex again without pain, at least for a good few years anyway. Of course, endometriosis does grow back and i have since had a 2nd op. The gold standard is actually having the endometriosis sites excised so they don't grow back but I haven't had that. Also my bladder is stuck to the front of my body but the risks are too great to unstick it.All surgery carries risks but you need to weigh up how bad you feel now with those risks. Straight after surgery of course you'll feel rough and the first period is usually very heavy but after that you should feel better. I felt so much better and look back with certainty that it was the right thing for me. I definitely endorse looking at the diet side also. Bear in mind if you have the op it is a good idea to look at the hormone medication side to delay it growing back. Good luck with your decision. All the best
Thank you for sharing so much of your experience with me. I really appreciate it. I am so glad to hear that you actually felt better and that you know you made the right decision. Thank you again!
Hey so I had my 1st lap 3 years ago they drained the cysts and didn't actually remove a whole lot as mine is on my bowel so had to be careful as could end up worse of or with a stoma. My periods were Soo much better after that I only really struggled around my period anyway but I wud be bent over in pain taking feminex like they were sweets. Last year I had another plus having my tubes removed. But yea after my first lap my periods changed for the better and wasn't doubled over in pain so for me that was a huge plus and glad I went through with it
Thank you so much for sharing your positive experience with me. I really appreciate it! I’m so glad to hear that things changed for the better after your lap!
Yes, Bramble is correct I think. It is mainly people who are still struggling who go on forums for answers. I believe the stats are quite good for a lap helping. I don't think I see a lot of the lap making it worse, the main negative experiences are that it doesn't make it any better, or it goes for a while and then returns.
I have had one lap but they didn't remove a lot of the endo as they thought they were just removing a cyst and then discovered severe endo. I'm of an age where having children isn't an issue, so I had one endometrioma drained in the surgery then went on prostap. Those together were really effective in reducing my symptoms. A night and day change.
I'm now in the waiting list for a second lap where they are going to remove as much endo as they can and give me a full hysterectomy. I am hopeful that this will give good results, but I know there are no guarantees. I hope this was helpful.
Hello, I am 50 and I have had five laporoscopies since the age of 18, the first was just diagnostic. The others have used laser to remove cysts and endo patches and to remove adhesions and scar tissue from bladder, bowel, ovary, pouch of Douglas etc. I previously tried many hormone treatments which didn't work. In between the operations I use the pill which holds it a lot but I do get some pain still and eventually need another operation. After each operation I don't feel very well for a while as post recovery pain and shoulder pain but I do find that each operation has been hugely beneficial and certainly way better than the hormones I was given. They have enabled me to be able to carry on with life and not be in pain every single day. Of course all surgery carries risks and they do create additional scar tissue and adhesions but in my experience they have been very worthwhile. You will also know exactly what is going on inside afterwards as well. I do hope this helps reassure you a little bit. If its any consolation even at my age I still get scared when I have them. Take good care of yourself. x
Hi there! I had my laparoscopy just over 1 month so it may be too early for me to know for sure - but in general I have had a lot more energy, felt much more productive and been able to properly enjoy social events. Some of the symptoms I had pre surgery were chronic fatigue and I would be bent over in pain for days (sometimes up to 14 days with no relief) with endo pain and no painkillers working. The first period I had post surgery, paracetamol was all I needed to manage the pain and be able to continue doing whatever I need to. I also haven't had the stabbing pains through my upper and lower abdomen that I would with endo. So so far, it's been amazing for me.
What I would say if you're nervous - speak with your surgeon around your particular circumstances - for example, if you know whether you do have it, where it is etc - they may be able to give you more advice about what the surgery would entail. If you don't know for sure (I didn't but was my last option to manage the pain), there's quite a bit of information on the internet about the procedure, things you can do to prepare and things you can do post surgery to help support your recovery. Some of those being having peppermint tea, parsley tea, a pillow for your return journey so you can protect your stomach, loose fitting clothes. I also found getting a list together of comforting things I could watch and read (I didn't do any reading in the end) was also super helpful.
I would also say definitely have a conversation with them about whether it would be excision (removal) or ablation (burning). Research suggests excision can be more successful.
In terms of my recovery experience - I will be honest and say it was difficult at times but I am feeling much much better now. The healing process can take some time and is different for everyone.
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