Freaking myself out :(: I feel like I'm... - Endometriosis UK

Endometriosis UK

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Freaking myself out :(

Heather18 profile image
9 Replies

I feel like I'm going insane and assuming the worst constantly, I also feel so alone because nobody is taking me seriously, so hopefully someone on here will. I think I have endometriosis, but I am also driving myself mad because I'm worried it could be ovarian cancer, I'm so worried

The last couple of months I've been in a lot of pain, I remember the pain starting off in both my hips then it moved round to my lower back, I have constant lower back pain, bloating most days, frequently peeing (literally every half hour) it also sometimes hurts when I pee, I did go to the doctors and have had so many urine tests done but they've all come back clear. My periods have always come every month and can be very painful, although this month, I haven't come on yet and I'm late, so I'm worried as I've never missed a period before, also when I'm on my period, I have ALWAYS had blood come from both passages, from since I remember I have had blood come from the front and back, I've never thought anything of it before because I've always felt perfectly fine, I can remember always having periods pains that traveled down my leg too, but recently I've had all these other symptoms too and I'm freaking out. I suffer with anxiety and depression and find these things so hard to come to terms with! I went to the hospital a couple months ago due to a pain in my right lower side of my stomach, my ovary it felt like! I had blood tests done and they all came back clear, but I'm worried that they didn't do the correct blood tests so I could still have cancer :( I'm just so worried, i feel so alone I really do! If anyone could give me advice I would really appreciate it, I'm only 18 and so so worried. Thank you xxx

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Heather18
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9 Replies
Stresshead24 profile image
Stresshead24

Hi I don't have alot of knowledge as I've only recently joing this forum but wanted to say hi. I am also a very anxious person so know how you can drive yourself crazy, But try not too as I've learnt it doesn't really get us anywhere.

With regards to your symptoms I would definitely go to your GP and explain it all again to them and insist on them taking some tests. Hopefully some of the other ladies here can give you a better answer regarding symptoms.

Take care x

Heather18 profile image
Heather18 in reply to Stresshead24

Thank you for replying! I'm just worried :( I don't want it to be anything serious and anxiety doesn't help, it drives me mad I feel like I'm going insane x

kds16 profile image
kds16

Hi Heather it is perfectly normal to feel anxious and I would say write all your symptoms down and schedule an appointment with your doctor to discuss.there could be so many things to explain it but we are programmed to naturally think the worst.i am the same x

Heather18 profile image
Heather18 in reply to kds16

I will do thank you, just scared about the results of it :( thank you for replying xx

Lil_Lady profile image
Lil_Lady

Hi Heather,

Firstly I'm glad you have found this forum as it is a great place to talk about your worries.

It sounds like you are having a tough time. Dealing with things like this is never easy.

I'll tell you a little bit about my story.

At 17 and 19 I took DVT (deep vein thrombosis) and had a terrible time with this. I have been left with a mimic of my DVT that I have on a daily basis and even 11 years on from the second one I still sometimes freak out it is something more. I have also been left with severe chronic pain in my hip.

Then in my twenties I thought I was losing my marbles. I kept having pain around my ovaries, bloating, needing to pass urine constantly, even though I was on the mini pill I was randomly having intermittent bleeding and sex had become very painful.

I got passed from pillar to post and kept being told there is nothing wrong. However my GP persisted with finding me someone who would see properly what was going on.

Last year I had what you call a laproscopy and hysterscopy. I was diagnosed with endo. I also had scarring cut away as well as my endo lasered.

For me because I take blood thinners for my DVT I have exhausted really all treatments. So I need another lot of surgery.

However this time my head is running away with the what ifs! I'm stressing myself out and because of this I'm not helping myself.

I can't predict what is going on inside me with any of my illnesses. I have to cross that bridge when I come to it.

If you are comfortable with your GP then discuss the fact that you think you may have endo and ask to be referred to a gynaecologist who can investigate it further.

Please don't ever think you are alone because you are not.

They are always girlies on here to support you.

I hope this has helped you, even just a little.

Chin up xx

Heather18 profile image
Heather18 in reply to Lil_Lady

This has reassured me so so much. Honestly thank you that made me feel so much better! I hope you're okay and not feeling too stressed out anymore, feeling alone really is the worst :( you're an angel thank you so so much xxxx

Hi sounds like endo, you have all the symptoms I did but to be sure you will need to be referred to an endo specialist or gynocologist, you will have to go through Pap smears and other examinations, scans to make sure it's nothing else, endo rarely shows on scans etc unless it is a large mass, you would need a laparoscopy to be sure it is endometriosis so this is why it is important you write down all you symptoms, questions you want to ask your doctor and take it from there x

Also when you suffer from pain it raises your blood pressure and inflammatory response so this in hand can trigger low mood, panic attacks and depression as the body is trying to recover from the amount of stress it is under.

These are normal responses.

Heather18 profile image
Heather18 in reply to

Thank you so much for replying it means to much to me, thank you for reassuring me Xxx

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