mirena coil help: So I’ve had the mirena... - Endometriosis UK

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mirena coil help

Smiley2022 profile image
10 Replies

So I’ve had the mirena coil in now for endometriosis for almost 5 months , spotting on and off , headaches , body aches , hot flushes, nausea, pms and now my mood has took a turn for the worse

I was hoping it would have settled by now !!

My Gp wanted to add the progesterone only pill to it ,but now that my mood has worsened I’ve decided not to take it

Anyone know how long the mirena takes to settle?

I don’t know if I can put up with all of the symptoms any longer 😢😢😢😢

Thankyou in advance

Tina x

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Smiley2022 profile image
Smiley2022
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10 Replies
JEWM profile image
JEWM

hey Smiley,

You’ve done well getting to 5 months!

I’m 1 month in with the merina and I’m annoyed enough already. Obvs no idea how long it takes to settle really and I’m sure it’s a big unknown and variable for each woman, but I keep getting told, up to 6 months by the drs/nurses etc that I’ve been seen by recently …...

Smiley2022 profile image
Smiley2022 in reply to JEWM

Hi Thankyou so much for your reply

I don’t know how I’ve manage it this long either !!!!🤣

like you say everyone is different

Well at least I can say I’ve tried 👍

Il try give it one more month, but if I’m still feeling the same I want it out

Thanks

Tina x

KlP28 profile image
KlP28

Hi smiley

I had these symptoms, & still spot/bleed (for a day or two - lightly) now & I’ve had it for a couple of years.

I’d say give it 6-9 months & if nothing improves consider having it removed.

Take care x

Smiley2022 profile image
Smiley2022 in reply to KlP28

Hi Thankyou for your reply

Im glad it’s working for you 👍😘

Hoping it will too for me eventually

Tina x

AMJ88 profile image
AMJ88

Hi, I've had the coil for 9 months, the first 4 month were horrible, lots of issues, bled everyday, tender breasts etc and was advised to take evening primrose oil and just give it time. I took the evening primrose oil for about a month and they were great unfortunately it triggered bad indigestion for me though so had to come off, but everything seemed to settle down for a while.

Was brilliant for a few months and then some reason it seems to have gone back to square one again. Now I just want it out!!

Good luck and remember no one knows your body like you! Xxxx

Smiley2022 profile image
Smiley2022 in reply to AMJ88

Hi Thankyou for your reply

Yeah it seems to be pot luck

Any ideas what you will try next ?

I feel like I’m out of options as I’ve tried everything else 😢

Tina x

AMJ88 profile image
AMJ88 in reply to Smiley2022

Same here really. Been on pill, mini pill, zolidex injections,

Surgery helped loads so thankfully it's not as bad as it was so I really don't know what will be next.

💛 Xx

Smiley2022 profile image
Smiley2022 in reply to AMJ88

Hi yeah I think when like us you’ve tried so many different things and nothing works you kinda get fed up and lose hope

Think it’s gonna have to be some kind of surgery for me next even if it’s another laparoscopy

But then it’s the wait 😡

Waiting lists are even worse now than before 😢 x

AMJ88 profile image
AMJ88 in reply to Smiley2022

When did you have your last laparoscopy? The NHS wouldn't even offer me one, I was struggling to walk and had been on zoladex for 16 months but they didn't even offer that to me as a choice so had to go private (thankfully work covered healthcare) but its been less than a year and worry already xx

Smiley2022 profile image
Smiley2022 in reply to AMJ88

Hi I had my laparoscopy in August 2018 on the nhs

I also had Decapeptyl imjections in 2022 on the nhs

Can’t believe they didn’t offer you anything and that you had to go private !!! It’s disgusting isn’t it !!!! 😡😡

X

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