Colonoscopy pain: Hi everyone 👋I had a... - Endometriosis UK

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Colonoscopy pain

Shellbell2023 profile image
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Hi everyone 👋I had a colonoscopy last week Wednesday, and had some biopsies taken at the time, my endo pain was improving, it had been terrible for the 3 weeks prior but didn't want to miss this appointment as it had been booked for months so went anyway, since then the pain has been so much worse, bloating is back, nausea, dizziness the works, has anyone else had this after a colonoscopy or should I think about ringing my GP... Not that I think that will get me anywhere!? Appreciate any help and advice!

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Shellbell2023
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TennisCourt profile image
TennisCourt

Hey! I felt this after my colonoscopy omg! I had so much like trapped gas and extreme gas pain, when I could feel it go through my belly and hit my bum. Which I get when I flare bad!

Can I ask did you find the actual colonoscopy super painful? I had the sedative, gas and air and pain relief and I was literally crying out in pain!!! The pain was in my stomach like omg it makes me feel sick thinking about it! I felt it knocked all my insides it was agony… but I was so confused as everyone I spoke to about colonoscopies said it was fine and not painful at all.

The colonoscopy was clear apart from one polyp they removed.

I thought omg am I that much of a wimp like I was confused but at this point I wasn’t sure about Endo. I still only have suspected Endo, my first lap is December but my specialist thinks it’s super likely I have it. And I didn’t put two and two together until a few months after the colonoscopy that I wonder if it was knocking all the Endo? As I think I have it on my bowel xxx

TennisCourt profile image
TennisCourt in reply to TennisCourt

Oh and just remembered I had really bad stabby lightening bum pain after it!! Xx

Shellbell2023 profile image
Shellbell2023 in reply to TennisCourt

Thanks for that! I absolutely had the same thing, extremely painful, I was crying out, they kept having to stop because my blood pressure was going up, I also had the maximum dose of sedation, gas&air and pain meds and it made no difference, the pain was the worst on my left side, just under my ribs and it hasn't gone since 🙈 that's why I was concerned, I also had some biopsies taken, still waiting on the results. I was literally only told I have been "diagnosed" last week with endo, I say this loosely because, he said he was 90% sure, and the trial of meds will prove if it is, then will probably be in for surgery, But my consultant did think I may have endo on my bowel too, so I think it sounds like we are both in the same boat unfortunately! 💛

TennisCourt profile image
TennisCourt in reply to Shellbell2023

Oh my gosh I can’t believe it’s not just me!!! I’m so sorry you went through it but good to know I’m not crazy 🤪 I had biopsies and mine was all clear!

Bless you. I ended up going to see a specialist privately, just a consultation and she instantly just said next step is surgery for me. I am so ready for diagnosis and validation and to start to understand what’s going on!

What meds are you trialing? Xx

Shellbell2023 profile image
Shellbell2023

I also ended up going for a private consultation because the wait for even an initial assessment on the NHS was insane, so I'm starting Prostap and tibolone on Monday, but that's just going to be a temporary measure to try and control the pain until surgery too 🙈 not looking forward to starting the meds after reading some horror stories on here, but I've also heard some good things so, if it can reduce the pain, I'm all in!

TennisCourt profile image
TennisCourt in reply to Shellbell2023

bless you it’s a nightmare isn’t it! Ahhh okay yes, I’ve been offered chemical menopause whilst I wait but I’ve ended up going private for surgery as it was an 18 month wait in my area so I decided not to explore that yet as it was a shorter wait.

I sooo hope it works well for you ❤️❤️ xxx

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