post surgery bleeding. Does it ever stop?!? - Endometriosis UK

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post surgery bleeding. Does it ever stop?!?

Kieraface profile image
16 Replies

I had my surgery on 6th October to remove endo and I haven’t stopped bleeding since. It’s really getting me down. It slows but it never goes. It’s really starting to impact on my mental health and I’m still experiencing pain. Nowhere near as bad as it was but still not ideal but I’m putting it down to bleeding pain.

Please someone give me some hope that this bleeding will stop. I genuinely don’t think I can take anymore

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Kieraface profile image
Kieraface
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16 Replies
Clare_Devon profile image
Clare_Devon

Morning KierafaceSorry this having such a profound affect on you. Thanks for sharing.

I'm really doubtful that you should still be bleeding, all this time after surgery. You could be anaemic by now which will not be helping your mood/general energy levels. Perhaps schedule a GP follow up appointment to get a qualified opinion? There are meds available that can help ease bleeding- I have had Tranexamic acid before or theres also Mefenamic Acid. However, I am not a medical professional. So these may not be suitable for you.

I know Endometriosis UK also have a helpline you can call- number is on their website.

Hope you feel better soon xx

Kieraface profile image
Kieraface in reply to Clare_Devon

I’ve tried them all before and none worked. The only thing that did was the nexplanon implant and norithestrone tablets which I’ve been on for quite some time. Before surgery it sorted the bleeding and I had none but now it just isn’t working and I’m honestly at my wits end. I had a telephone apt with my private healthcare today as I don’t have a gp atm as I just moved House so they’ve recommended nhs111 to try get an emergency out of hours apt. Im so tired and run down now it’s unreal :( x

OlgaSz profile image
OlgaSz

I am really sorry you have to go through this..

Are you on a hormonal pill/Mirena? I was bleeding for 4 months straight when on hormones and was told that it will stop eventually. I just stopped taking pills whatsoever and refused a Mirena during the surgery.

Kieraface profile image
Kieraface in reply to OlgaSz

I’m on nexplanon implant and norithestrone tablets. Initially it worked. Then I had surgery and since then nothing is stopping my bleeding. I’m now genuinely worried and running on fumes :( xx

OlgaSz profile image
OlgaSz in reply to Kieraface

I am not surprised you are at your wits end at this point! I remember how my constant bleeding affected my mental health and I wouldn't wish that to my worst enemy...

What did they say at NHS111? Also have you checked possible side effects of the meds? It may be related.

Kieraface profile image
Kieraface in reply to OlgaSz

They referred me to my gp which means I’ve had to go back to my old gp and ask nicely for them to see me which they have agreed to this time but they’ve told me I need a new one as I’ve moved areas (officially moved Saturday). Hopefully get some answers this afternoon. Got my apt in an hour x

OlgaSz profile image
OlgaSz in reply to Kieraface

I will keep my fingers crossed for you 🤍

Kieraface profile image
Kieraface in reply to OlgaSz

They just did a blood test and then referred me back to my specialist as I need to be seen by gyny 😭🙈 I’m at my wits end - surgery was meant to make it better x

OlgaSz profile image
OlgaSz in reply to Kieraface

I am so sorry you have to go through it all...

Pennyheart1 profile image
Pennyheart1

Hiya,

it must be getting you down - it got me down too when I went through similar! I bled for 6 weeks or a little more after surgery to remove endo and I also had a uterine ablation - Which you’d think would stop it or reduce massively but not so much for me.

So I bled with different heaviness for 6 weeks - between a bit heavy, medium and then just constant spotting/really light - but even when really light I felt like - Enough already!!! And I just want to wear normal underwear too!

Then I had a week break to then have what I believe was my first period after as was pretty heavy and in pain for a week, but after that it settled.

If you’re heavy since surgery I’d say it’s worth getting checked out. If it’s light and worrying you - get it checked out to be sure and give peace of mind too. It’s not silly to look after yourself and be certain that all is okay.

But it could just be that your body is just taking that much longer to heal and - just hold in there as it will finish and I hope it does really soon! And that you ultimately improve from it in the long term X

Kieraface profile image
Kieraface in reply to Pennyheart1

My pain is starting to come back. I have noticed more back pain again and the bleeding is like yours was. Fluctuates between medium heavy and light but never stops. I genuinely do miss real underwear without having to wear girlie products! X

Pennyheart1 profile image
Pennyheart1 in reply to Kieraface

It ultimates between medium to heavy and eventually became light and stayed there and eventually stopped at about week 7 but then I only had a 3 week cycle I think after that too 🤦‍♀️ Sometimes I think my body just hates me! 🤦‍♀️😆

If you’re at all concerned I fully recommend getting checked out. There is nothing worse than constant wondering and/or worrying. And honestly I am totally beginning to actually believe that the wondering questions we have that we think will be dismissed are totally worth asking!! Just occasionally there might be a further reason - like even being anaemic as that can make your blood loss worse. Which I always think is weird.

And so remember the want for normal underwear with no girly products!! The experience made me buy period pants actually for the lighter days and carrying just in cases just so I felt that little bit better! X

Pennyheart1 profile image
Pennyheart1 in reply to Pennyheart1

I also didn’t have lots of pain with it. But achy pain and twinges. It would get worse with more movement/activity.

So for you it’s a balance of healing from surgery and where you feel it may not be normal X

Kieraface profile image
Kieraface

so I got referred back to the specialist and I saw him today. He is gonna do a hysteroscopy and a biopsy as ultrasound was normal x

chenkk8 profile image
chenkk8

Hi Kiera, are there any updates with your condition? What did your specialist say or what were the findings?

Kieraface profile image
Kieraface

small polyps but nothing that would cause this. Very vascular uterus was noted and he suggested a full body reset with no hormones and then look to start again in around 6 months if I want to

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