did anyone get any diagnosis through having an mri?

[Mic1810]

I have suspected endometriosis currently on the progesterone only pill to attempt to stop my periods… still bleeding and then now bleeding all the time 🤦‍♀️

The consultant I saw advised not doing laparoscopy and surgery due to previous c-sections as will be too high risk, so a different doctor and requested an mri on abdomen and pelvis, how likely is it that anything will be seen?

[Avourneen]

Thats how I got my diagnosis but you need a sonographer who knows what they are doing.

Deep endo should show up quite easily.

[KlP28]

Hi, I’ve had every scan going. And been told the only way to know for definite if you have Endo is with the naked eye - undergoing a laparoscopy. I think the scans are just ‘so that they’re doing something’ whilst actually waiting for laparoscopy. If you’re not already, ask to be put on the list for laparoscopy. Good luck x

[Mic1810 in reply to KlP28]

the consultant advice against the laparoscopy due to previous c-sections. So I have ask for a referral to a different gynaecologist and the first appointment on choose and book is January 31st 2024.

I’m just sick of all this pain I have 3 young children 😥 and it’s becoming so difficult to find the motivation to do anything.

Thanks for replying x

[Tiredgal72]

I was diagnosed from MRI results but I think it depends. I have quite a lot of deep infiltrating endo so it showed up quite clearly but for some people nothing shows up and it's only found via laparoscopy.

[Mic1810 in reply to Tiredgal72]

maybe I’ll just have to see what it says. The doctor has referred me not the gynaecologist, I can’t see a gynaecologist until January 2024 so I’m guessing wait for mri will be longer or similar.

Thanks for replying x

[Tiredgal72]

Yes, you don't really know until you get the results! I managed to get an MRI cancellation two days in advance so check that too as you may be able to get an appointment sooner.

[11WildHorse11]

I had endometriomas where one developed a mass on them. MRI picked up endometriosis and said the mass was endo related (can't remember the name they said). I don't know what stage or anything I am at, as haven't had the gyne appointment yet

[Mic1810 in reply to 11WildHorse11]

thanks for replying… hopefully they can see something (just so I get some answers), well when the appointment actually comes through I could be waiting months… husband said he’d pay privately but I just can’t justify spending the money when I’m literally waiting for one xx

[11WildHorse11 in reply to Mic1810]

I replied to another about private scan. I just had one for my spine as not getting anywhere with drs. It was with Scan.com and managed to snag a really easy location and was the cheapest of the locations given. Had images next day and full report the day after that. It was them who linked rheumatoid arthritis even though nhs didnt test or associate. Best thing I done but yeah it sucks having to pay at all. Perhaps see the timeframe you are looking at because it took me six weeks after gyne referred me for MRI to get it and then six weeks for results (and this was urgent referral too).

[Mneutz]

Hi, even if you get the mri and it shows endo that’s no help for your pain. Push for lap with laser surgery to get it out!! If you are done having kids and mri shows endo you could schedule a hysterectomy. Good luck!

I hate endo pain!!!

Tina

[KatDragon]

I am in total agreement with Avourneen here. That s how I got my diagnosis of Frozen Pelvis but you need a sonographer who knows what they are doing. They are few and far between on the NHS!