follow up

[Greenlady48]

hi ladies

I’m back again 😔

Following up on the laparoscopy I had in December where the gynaecologist doctor found nothing in the womb or ovaries.

I didn’t really get on with him but he was my only choice in Lincoln

I saw him today and took my partner with me this time as reassurance.

The doctor thinks that the pain is coming from elsewhere like the bowels or intestines.

he then starts again offering the zoladex again. I tried that last year.

I’m already past menopause.

Menopause is not a cure for endometriosis. He continued to repeat his self. I sat in silence and that made him feel uncomfortable

15 years I’m still going through this spiralling feeling of hopelessness. I’m 53 this year and the pain is worse. It’s worse because I’m drained with it. It’s worse because nothing works.

im currently off sick from work. The hospital I work in are unhelpful and I’m waiting for the occi health department to contact me.

the trust I work for would have be back tomorrow working 15 hr days and not care one bit.

Who actually looks out for us? The only people who do are our family and friends and most importantly us ourselves. 😔😔

[Lindle]

It is so shocking this is still happening. He sounds like a very general gynaecologist if he only looked inside your womb (hysteroscopy) and at your ovaries. The most important place is deep behind the womb, but the entire pelvic lining should be inspected.

I expect you've had many scans over the years, but have you had an expert one to look for deep endo?

[EndoNorthEast]

I’m so sorry, that it so upsetting and frustrating. Is he a endometriosis specialist? I have been on prostap for over a year now and it has helped with my pain, not entirely but enough to help me live my life while I wait for my surgery. It obviously doesn’t work for everyone. Have you had an MRI? This is only helpful if it’s then reviews by a real specialist. If you aren’t already can you ask to be referred to one of the endo centres? I hope you can get some relief and help soon. Things that have also helped me are beurer tens machine EM50, beyou patches, diclofenic suppositories (absolute god send), castor oil patches, bowel I love you massage with castor oil or magnesium spray. My endo is all within my bowel and while pelvic cavity and I feel everything is getting twisted in there. Focus on your bowel if you think this is where the endo is. Hope you get sorted soon.

[AlexaMac]

Hi sorry about your journey, l my self am post menopause, now 76 and began my journey of vaginal bleeds in November 2021. Have had lap surgery last December 2022 for removal of 5 inch cyst, both ovaries and both Fallopian tubes. They also did a hysteroscopy to sample endo.

When l went for my post op appointment was told l have cancer in my womb for which l had an MRI 2 days ago, will probably see the ‘team’ again next month.

It turned out my endo was measured at 1.9 mm at my first outpatients app and is actually 9mm so my case is being assessed by the hospital board to see where the mistake was made as l should have been fast tracked.

My main advice keep a day to day diary of your bleeds and pains, also bowel movements and take this with you to your appointments. Now l have the cancer information books from the hospital it states constipation along with the bleeds can be a pointer to the cancer.

Take care of yourself and hope you soon have the treatments you need. 🌸

[Greenlady48 in reply to AlexaMac]

Thankyou so much

And your still having problems. The useless doctor actually smirked and said he doesn’t see women in their 60s with endometriosis ☹️

[AlexaMac in reply to Greenlady48]

Pardon.? He doesn’t see ladies in their 60s l was 75 when my journey began, and you can imagine my surprise when l lost almost 1/8th of a pint of blood in the first 20 minute loo visit, sorry of this is too explicit.

Be strong, stand your ground and please please keep your diary daily, l even put CLEAN in my diary on the days when nothing happened. As I was having 8 day cycles, yes cycles, usually about 4 days bleed and 4 or 5 days *clean*

If possible take someone with you to each clinic appointment, for as strong as we think we are sometimes you might get 10 minutes into your consultation and you might go blank, that is why l strongly recommend the diary technique.

Hope you soon get the answers you hope for, will watch out for you on here if you want to chat some more, god bless, Alexa 🌸💐🌸

[AlexaMac]

hi Greenlady, just checking in, have you had any further news on your treatments, or if you just need a *chat* l will check back in a day or two, Alexa