Hi I’m really unsure which way to turn next, I had a lap last year and they found I had endo and adeno, precious scans and laps didn’t find anything. I’ve been on the depo for nearly 2 years and don’t have periods which is a good thing for me as they are awful, I spoke to my gynaecologist a few weeks ago over the phone and he mentioned scar tissue could be causing pains again etc, I had an ultrasound done yesterday and it’s clear I did expect this as precious ones been clear, however I am now stuck as pains getting worse and don’t know what to do?
Any ideas? Xx
What did they do when they found the endo?
Ultrasound rarely shows it, have they done MRI?
He burned it away and was great after surgery for about 5/6 months then boom pains come back even worse than before, previous MRI didn’t show a lot either but not had one recently.
I had Helica treatment which is a form of burning. I did research whys and wherefore’s, I know burning is not always considered the best treatment. I went with it as a treatment it had a more than reasonable success rate and the consultant had a lot of experience and knowledge.
Are you expecting to hear back from the gynaecologist? If not, you may have to contact them, if they aren’t that specialised maybe ask GP to refer you to someone else, and pain clinic.
Yes they are calling me end of this month but may call them to see if I can chat to them again, yes he is a specialist in endo.
Good luck, hope you get something sorted soon. I’m sure you will
Thank you let’s hope so☺️
Can I ask was your endo in patches or scattered like weeds so my gynaecologist referees it as? As this was a possibility mentioned to have done but never did do it? & not everywhere has the actual tools to do it?
Hi patches he said, I went private in the end as had years of let down on nhs so he is one of the top doctors where I live thankfully, x
I’m not sure of full extent, I know it was pelvic walls, pouch of Douglas on and in bowel. He didn’t think there would be much, afterwards said loads, so I’d probably say it’s scattered. He couldn’t see everywhere as uterus is enlarged and distorted with fibroids. Only see one ovary which looked ok.
I need to ask exactly what’s what, just avoided it. In a letter after op he put down further surgery could be complicated.
Yeh ask exactly what was found and about surgery I have endo and adeno so that can cause me daily pain, it’s a nightmare to live with x
Same, just taken someone to B&Q and it’s kicked off.
Waiting for them to organise endo MDT still to find out what they want to do. The local hospital has a BSGE centre, obviously not organised after covid interruption 🙄
Nightmare yes everything is delayed x