Ultrasound and mri for detecting endo - Endometriosis UK

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Ultrasound and mri for detecting endo

Rachel20 profile image
13 Replies

Just wanted to chek that endo can be missed on anultrasound and mri.Havent had an mri but the ultrasound looked normal

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Rachel20 profile image
Rachel20
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13 Replies
Avourneen profile image
Avourneen

HI Rachel, it all depends on the sonographer. If you go to a good specialist sonographer they won't miss it if you just go to a general sonographer will no specialsit experince they won't know what to check for.

Rainbow2468 profile image
Rainbow2468

Hi when I had my second ultrasound done,it was done by a consultant and she said I had signs of endometriosis. But the at first one it wasn't mentioned.

Rachel20 profile image
Rachel20 in reply toRainbow2468

thank you..i think they should show you the scans and point things out.Would make everything

Rainbow2468 profile image
Rainbow2468 in reply toRachel20

I could see my second scan but nothing was pointed out. That would make things a lot easier

Rachel20 profile image
Rachel20 in reply toRainbow2468

absolutely...

Lindle profile image
Lindle

You might find this useful:

healthunlocked.com/endometr....

Rachel20 profile image
Rachel20 in reply toLindle

than

HortC11 profile image
HortC11

Hi,

Did you have an external or internal ultrasound? External is not a very good diagnostic tool, internal is better but can still miss things. MRI is a lot more accurate and detailed aside from having a laparoscopy. Hope that helps x

Rachel20 profile image
Rachel20 in reply toHortC11

thank you..i had both.I had one two years ago that diagnosed pelvic congestion enlarged veins and another one that i was just told looked normal.Dont know if enlarged veins were spotted again the doctor reading my notes implied he didnt believe enlarged veins couldcaue problems.So not sure if they were on the second scan.Felt too uncomftable to ask due to the gps reaction

Lindle profile image
Lindle in reply toHortC11

Actually ultrasound is better than MRI for rectovaginal endo when done by an appropriately skilled advanced sonographer and can show what can't be seen at diagnostic lap.

Rachel20 profile image
Rachel20 in reply toLindle

yes not sure how skilled the sonographer was.Gp just said it looked norma but large amount of gas was shown apparently Not sure if the enlarged veins are still showing like they did on my last ultrasound. The gyne im seeing said it looked normalin a letter to my doctors.Havent had my 1st appointment yet

CrazyHoundLady profile image
CrazyHoundLady

I think it comes down to who is interpreting the scans and whether they are looking for endo.

I was having a terrible time with my endo about 10 years ago, it was really affecting the use of my right leg. The leg felt twice the weight of the other and I had permanent right pelvic pain. Once my appendix had been ruled out nobody seemed to be in a rush to do anything about it. I pushed for gyne appointment and was eventually seen and they ordered ultrasound.

I had both external and internal ultrasound done and was told everything looked “normal”. This was despite the fact that every time the radiographer pressed the internal probe to the right I practically kept off the bed with the pain. But I was declared to be fine and told to take pain killers.

I moved shortly after this and to be fair I did pursue it with my new GP until it really got bad again. I was sent to a physio for months and eventually he admitted defeat and referred me to orthopaedics. All the while I kept pushing the endo angle but wasn’t getting anywhere. They ordered an MRI but I was never specifically given the results. I was then given an appointment with a specialist physio who turned out not to have any endo experience, who treated me for bursitis for several months. Rather predictably it made no difference.

I then resorted to a private osteopath who very quickly dismissed the bursitis diagnosis. She reckons it could easily be endo affecting my psoas muscle.

Rachel20 profile image
Rachel20

its dreadful.Have heard the same kind of stories here over and over again.So sorry you went through all that.If only someone had listened you wouldnt of had 10yrs of pain.Thank gid you finally found someone who listened and and cared.Its just not good enough is it.

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