MRI for Endo and IVF: Hey Everyone... - Endometriosis UK

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MRI for Endo and IVF

Beckyxx profile image
6 Replies

Hey Everyone,

Recently had an appointment with my gyny doctor, he seems to think that my endo is deeply infiltrated and wants to check this on an MRI, has anyone had an MRI for their endo before? He also said that is this is the case it maybe very unlikely I will be able to conceive naturally and would need IVF. Has anyone on here had the same experience. It is upsetting me quite a lot and haven't really slept since finding out about my likely fertility options.

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Beckyxx profile image
Beckyxx
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6 Replies
Rehanat profile image
Rehanat

Hey- I had an mri last year and it was absolutely fine, an mri is much better as it gives the surgeons a better idea of how severe the endo is. It does take a while tho-mine took about 1hr .

I was diagnosed with stage 3/4 endo in 2015 and we were also told it would be hard to conceive, we did ivf which failed and then miraculously conceived our baby 6 months after that, took us 2 1/2yrs in total. Endometriosis doesn’t make you infertile , it just makes it harder to conceive but you can also change ur diet etc to help.

Don’t worry just yet and I wouldn’t rule anything out x

Krisztina111 profile image
Krisztina111

Hi,

Endometriosis doesn’t make you infertile for sure, it depends where is it. There is a test which can tell you.

“Hysterosalpingo-contrast-sonography (usually shortened to HyCoSy) is a safe and reliable outpatient ultrasound procedure. A Hycosy is used to investigate infertility looking at the cavity of the uterus and the fallopian tubes. If either the cavity or the tubes are damaged, it may be difficult to become pregnant.”

When I had my diagnostic laparoscopy they checked the tubes, and the dye liquid didn’t go through on my tubes. I’ve been told both of them blocked so I need IVF.

So you need to find out first, the status of your uterus and tubes.

Beckyxx profile image
Beckyxx in reply toKrisztina111

Hi, thanks for your reply :)

The doctor advised that I would also have the dye test done to check my tubes whilst they are doing the laparoscopy so like you said, I guess I will know more about that. Just very anxious to find out.

Bborna profile image
Bborna

I had my gyny appointment and scan yesterday and the dr. who did the scan also suggesting me to do a MRI. I am also very confused why he asked it? I am an endo since 2007. Already had 2 laparoscopy and an open up surgery. To be very honest with you endo effects your fertility depending how difficult and which stage you are in. So its better to not take any chances when you have endo. Please follow what the dr.s suggests . All the best wishes dear.

StefaniaJW profile image
StefaniaJW

FALSE, FALSE AND FALSE AGAIN. I have seen many cases of women who successfully conceived naturally with deep-infiltrating endometriosis, after undergoing advanced excision surgery with a team of well-trained and experienced surgeons.

IVF is something you need to undergo if both of your ovaries are highly damaged. If at least one of them is viable, you don't need to undergo IVF straight away.

An MRI can be useful but it will never be able to let the physician all endometriosis. Only an advanced laparoscopy with a highly trained excision surgeon will tell you exactly the extent of it, whether your tubes are clear or not (the HSG can tell you if they are blocked or not too but sometimes they can be opened during surgery so you'll never know until you get Fallopian tube reconstructive and advanced excision surgery), where exactly the lesions were and how severe.

PM me if you need names of surgeons who are definitely going to help you get cleared of all endometriosis, no matter how deep-infiltrating and optimize your chances of conceiving naturally.

FingersXssed83 profile image
FingersXssed83

Hiya, I had an MRI three weeks ago because my consultant suspected grade 4 endo and to plan my surgery.

They didn’t see anything on the MRI then when I had my lap a week later they found endo on my ovaries, one blocked tube, in my urethras, pouch of douglas and pelvic walls so it was extensive but superficial and I had no deep infiltrations so they graded me stage 1-2.

They said that IVF is the best way for me to conceive (I have already had 3 IVF retrievals/transfers of 5 eggs in total all BFN) but chance of natural BFP is highest up to a year after the surgery.

I know people with stage 4 who have gone on to have babies with IVF/naturally and also people who have been unable to conceive.

You are better to know what you are dealing with and getting through the MRI and lap, as this will help you to tailor your IVF treatment better and remove any spots of endo.

Good luck! X

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