Hi there wondering if anyone out there has any advice. I had a bilateral salpingo oopherectomy 10 weeks ago. I was told after this op that everything should be good and I would be Endo free. My ovaries were āstuckā to the pelvis cavity. During the laparoscopy my surgeon took biopsies and also looked at uterus, kidneys, gall bladder and liver , thankfully there was no endometriosis present there. He said he would discuss findings with me at follow up. He was really caring and understanding. I recovered well from the operation and was relatively pain free apart from the healing but after the 3rd week I began to have pain again but just in my right side, back, hip and abdomen. The pain is exactly the same as before my op . It hurts and pulls when I need to urinate, during and after. Also when I feel the need to go I canāt hold it, and also when I need to open my bowels there is pain . I went to my gp who arranged an ultrasound which was all clear apart from fibroids which I knew about already. Could this still be endometriosis related even though Iāve had this operation. There was no mention of Endo being anywhere else but Iām also not sure to what extent my surgeon explored. He is currently unavailable for the foreseeable future , when I went for my follow up appointment it was another gynaecologist who wasnāt really willing( or able) to discuss the findings or answer my questions. He advised me that his job was to prescribe HRT and discharge me back to my gp. I have since spoken to my gp and have been referred back to gynaecologist. I do feel extremely lucky to have a proactive gp. The appointment is with the same consultant who discharged me. I feel that he will just dismiss me again.
Could this pain Iām now feeling be imaginary. Am I wasting everyoneās time by being referred back. I have suffered for years before this op from heavy blood loss and pain but always thought it was ānormalā as we didnāt discuss periods. I feel so alone as scared Iām just over reacting now. Should I just pull up my big girl pants and get on with my life the best I can.
I promise Iām not feeling sorry for myself as I do continue to hold down a full time job and have an amazing family, and really appreciate the help I have had so far, but just feel as though I am no further forward than I was. If I just need a kick up the bottom please feel free to let me know š.
Any advice will be greatly received xx
Hi, I hope youāre having a good day?
Iāve suffered years of pain, finally found an amazing gp who pretty much straight away got me referred to an endo specialist, having had several tests and scans then a laparoscopy I had a total hysterectomy, my ovaries were also stuck with endo but because of my age they left my ovaries and removed the endo. I thought that was it and Iād feel so much better. Unfortunately only after 4 months the pain came back just the same as before, sharp pain to mainly one side of my pelvic area. I was referred back to the specialist and I was told the endo had probably come back and I needed an oopherectomy, I had that a few years ago now, but again I had pelvic pain return after 6 months. I then had another laparoscopy 5 months ago. Only now Iām feeling pain again!
Itās so frustrating, like you, I feel is itās in my head, but we know our bodies, Iāve also had great support from my gp, family, and consultant, Iāve not mentioned it to anyone til now either, but after reading your post I donāt feel like Iām the only one going through this. Im sorry this isnāt giving you much advice, but I hope it help you know youāre not alone. Maybe now we should consider going back to our doctors and have a talk about how we feel?
I hope you get some advice and help, keep in touch, let me know how things are going.
Big hug š¤
Thank you so much big hug, just the name has bought tears to my eyes. I honestly think Iām going mad some days. In some ways the op helped but I am still left with a lot of the same issues which do seem to be getting worse. Just taking the time to respond to me means the world. Iām so worried the consultant will say no way itās Endo or that itās too soon. I was told without my ovaries there would be no more issues but after reading so many other posts I know that isnāt the case. But to be suffering again this soon just made me think it canāt be possible either. I know I need to give the consultant credit but he isnāt an Endo specialist. Not sure how to go about asking to see an Endo specialist or if I will be taken seriously if I donāt get any help.
I think we do suffer in silence a lot donāt we as donāt want to burden family friends etc when they have supported us some much and just want us to be ābetterā. Itās so good to have ladies like you to share with. It would appear we are not alone š. I will post sun update . Again thank you so much you can chat to me anytime xx