Hi there wondering if anyone out there has any advice. I had a bilateral salpingo oopherectomy 10 weeks ago. I was told after this op that everything should be good and I would be Endo free. My ovaries were “stuck” to the pelvis cavity. During the laparoscopy my surgeon took biopsies and also looked at uterus, kidneys, gall bladder and liver , thankfully there was no endometriosis present there. He said he would discuss findings with me at follow up. He was really caring and understanding. I recovered well from the operation and was relatively pain free apart from the healing but after the 3rd week I began to have pain again but just in my right side, back, hip and abdomen. The pain is exactly the same as before my op . It hurts and pulls when I need to urinate, during and after. Also when I feel the need to go I can’t hold it, and also when I need to open my bowels there is pain . I went to my gp who arranged an ultrasound which was all clear apart from fibroids which I knew about already. Could this still be endometriosis related even though I’ve had this operation. There was no mention of Endo being anywhere else but I’m also not sure to what extent my surgeon explored. He is currently unavailable for the foreseeable future , when I went for my follow up appointment it was another gynaecologist who wasn’t really willing( or able) to discuss the findings or answer my questions. He advised me that his job was to prescribe HRT and discharge me back to my gp. I have since spoken to my gp and have been referred back to gynaecologist. I do feel extremely lucky to have a proactive gp. The appointment is with the same consultant who discharged me. I feel that he will just dismiss me again.
Could this pain I’m now feeling be imaginary. Am I wasting everyone’s time by being referred back. I have suffered for years before this op from heavy blood loss and pain but always thought it was “normal” as we didn’t discuss periods. I feel so alone as scared I’m just over reacting now. Should I just pull up my big girl pants and get on with my life the best I can.
I promise I’m not feeling sorry for myself as I do continue to hold down a full time job and have an amazing family, and really appreciate the help I have had so far, but just feel as though I am no further forward than I was. If I just need a kick up the bottom please feel free to let me know 😊.
Any advice will be greatly received xx