excessive blood loss : hi how's everyone... - Endometriosis UK

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excessive blood loss

dodgeviperdiva profile image
β€’13 Replies

hi how's everyone doing? for those who don't know me, I've had issues with my periods since 13 and diagnosed with endometriosis since 05, I've been on every combination of hormonal treatments and pain relief medications u can imagine (to the point where I'd rattle when I walked) I've had so many operations u can play dot to dot with my scars. 24yrs I've struggled with pain, I've been passed from piller to post within the NHS and gotten nowhere πŸ₯Ί

I've been on transanamic acid and mefanamic acid for blood loss but unfortunately it did nothing for me 😞 I understand that it will work for some but not for others but I'm fed up with being a test subject πŸ˜‚

I'm currently on day 2 of my period πŸ˜’ I feel so rough, the pain is so agonising its knocking me sick! it's a low twisting sensation deep in my pelvis, I can't seem to get comfortable in any position for long? I put in a super tampax and within 30mins I've bled through my clothes! usually I don't have to change it for an hour or so but this month is just harsh. I feel dizzy n faint and I can't stop bloody trembling, I'm struggling to stand up for fear of passing out πŸ˜‚ I have to laugh or I'll cry but I'm close to my limit right now, even high pitch sound's are getting on my last nerve 🀬 I feel like pulling my hair out, like I'm on edge?! I'm using every tool I'm my tool kit to help cope with this but nothing is working I don't know what else to do? I'm currently on 600mg pregabalin and 15mg/ph butrans patches 30mg dihydrocodeine as well as paracetamol n cbd oil as well as smoking cannabis.

Has anyone got any coping mechanisms that may work? I've using heat, music therapy, meditation (although extremely difficult in this condition) and medication, I can't use the tens machine it's causing agonising spasms. any help appreciated xxx

13 Replies
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CryBaby91 profile image
CryBaby91

Hi babes, I'm sorry you're having a shitty day! I'm on day 2 too and I feel like throwing up, my kidney is killing me. I wish I had some advice but just try breath and keep calm, remind yourself it will pass and calm down. Xxx

dodgeviperdiva profile image
dodgeviperdiva in reply to CryBaby91

thank you 😊 I'm going to have a relaxing bath after tea fingers crossed that'll help 🀞😊

CryBaby91 profile image
CryBaby91 in reply to dodgeviperdiva

You feeling better today babe? Xxx

dodgeviperdiva profile image
dodgeviperdiva in reply to CryBaby91

still rough but I'm πŸ‘Œ ta, how's u feeling xxx

CryBaby91 profile image
CryBaby91 in reply to dodgeviperdiva

Glad things have calmed slightly :) not crippling pain for me today but it is still knocking me on my arse every now and then, bloody pain in my kidney on the right is driving me mad 😠 and I'm getting sick of this bloated pregnant look πŸ™„ going to watch some Ru Paul to cheer myself up :) xxx

dodgeviperdiva profile image
dodgeviperdiva in reply to CryBaby91

hi hun how's u doing today πŸ™‚ I'm feeling better now, that was a harsh month! πŸ˜‚ I'm still drained πŸ˜©πŸ˜‚ could u possibly have a uti? u should also look into devil's claw it's a natural anti-inflammatory and should help with pain and bloating xxxx

CryBaby91 profile image
CryBaby91 in reply to dodgeviperdiva

Better today thankfully! Glad you're doing better too :) though I'm already dreading ovulation πŸ˜ͺ which I'm guessing we will both have happen the same week haha we've synced πŸ˜‚ definitely not got a UTI, after years of going to the GP thinking that I started buying my own urine testing strips, saves time wondering if its an infection lol checked and that's fine, but had some trace blood still yesterday even though I came off Friday last week. πŸ™„ bloody bladder. Xxx

CryBaby91 profile image
CryBaby91 in reply to CryBaby91

Devil's claw sounds intriguing ill have a Google! Xxx

dodgeviperdiva profile image
dodgeviperdiva in reply to CryBaby91

πŸ˜‚ seems like the faster option to be honest πŸ˜‚ yeah I'm already dreading ovulation too πŸ˜‚ il probably get a day or two of feeling a bit more normal than il feel shit again πŸ˜‚ round and round πŸ˜‚ 🀣 🀣

CryBaby91 profile image
CryBaby91 in reply to dodgeviperdiva

Same! I used to get 2 weeks poorly and 2 weeks relatively normal, unless I pushed too hard or had some kind of huge stress which would set a flare off. But yeah back in 2019 that was my normal. But from 2020 it started seeping more and more into that 2 weeks, now I get maybe a day or 2 between cycle changes :( and even then the good days are just manageable pain. Ugh. I hate this condition :( feels like my body is trying to push organs out! Xxx

dodgeviperdiva profile image
dodgeviperdiva in reply to CryBaby91

πŸ˜‚ It's sound's like I'm talking to myself πŸ˜‚ U mirror me exactly πŸ˜‚ 🀣

CryBaby91 profile image
CryBaby91 in reply to dodgeviperdiva

Haha well at least we know we understand each others pain :) xxx

dodgeviperdiva profile image
dodgeviperdiva

πŸ˜‚ That's true, how's things going with the Dr's /hospital? xx

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