hi how's everyone doing? for those who don't know me, I've had issues with my periods since 13 and diagnosed with endometriosis since 05, I've been on every combination of hormonal treatments and pain relief medications u can imagine (to the point where I'd rattle when I walked) I've had so many operations u can play dot to dot with my scars. 24yrs I've struggled with pain, I've been passed from piller to post within the NHS and gotten nowhere 🥺
I've been on transanamic acid and mefanamic acid for blood loss but unfortunately it did nothing for me 😞 I understand that it will work for some but not for others but I'm fed up with being a test subject 😂
I'm currently on day 2 of my period 😒 I feel so rough, the pain is so agonising its knocking me sick! it's a low twisting sensation deep in my pelvis, I can't seem to get comfortable in any position for long? I put in a super tampax and within 30mins I've bled through my clothes! usually I don't have to change it for an hour or so but this month is just harsh. I feel dizzy n faint and I can't stop bloody trembling, I'm struggling to stand up for fear of passing out 😂 I have to laugh or I'll cry but I'm close to my limit right now, even high pitch sound's are getting on my last nerve 🤬 I feel like pulling my hair out, like I'm on edge?! I'm using every tool I'm my tool kit to help cope with this but nothing is working I don't know what else to do? I'm currently on 600mg pregabalin and 15mg/ph butrans patches 30mg dihydrocodeine as well as paracetamol n cbd oil as well as smoking cannabis.
Has anyone got any coping mechanisms that may work? I've using heat, music therapy, meditation (although extremely difficult in this condition) and medication, I can't use the tens machine it's causing agonising spasms. any help appreciated xxx