Contraception pill (mini pill) and gluten... - Endometriosis UK

Endometriosis UK

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Contraception pill (mini pill) and gluten free diet for endometriosis.

Cockapoo-2016 profile image
11 Replies

Hi Ladies.

Back in November 2021 I was diagnosed with endometriosis through laparscorpy surgery cyst was 8cm on my left ovary and another one on my rectum. On Tuesday the 26th of April I had ultrasound scan to check my ovaries, womb, fallopian tubes etc. The hospital has found that after 5 months of having laparscorpy they found that my endometriosis is growing back, at the moment it's 1cm to 2 cm.

The gynecologist wants to put me on the contraception pill( mini pill) due to my age. I am nervous to go on the mini pill due to side effects. I wanted to ask has the mini pill helped anyone with endometriosis by slowly the growth, eased the pain, side effects, weight gain, stopped periods etc. Also is anyone on gluten free diet? Has I've read someone that gluten free diet is better then gluten diet if you suffer with endometriosis.

Any advice is very much appreciated 😊.

11 Replies
Avourneen profile image
Avourneen

I have been on the mini pill for two years since my last op. Initially i was on one pill per day but I bled constantly and it didn't work for me. I sopke to my specialist and he said I should double the dose. After doing that it completely stopped all the bleeding and stopped my periods which has massively reduced my pain. It has made a huge difference to the quality of my life but I don't know whether it has stopped the endo growing or not. I think the evidence on that is still not clear scientifically. I had no wait gain, no change in moods and it completely stopped the breast pain I had too. I'mhoping I can stick with this until the menopause.

Cockapoo-2016 profile image
Cockapoo-2016 in reply to Avourneen

Thank you so very much for taking the time to reply and for sharing your experience xx.

Avourneen profile image
Avourneen in reply to Cockapoo-2016

Not at all you are more than welcome. I hope you find something that works for you.xx

Narcica profile image
Narcica

Hi, the pills never helped me, I’ve tried many different ones for a decade. Right now I am receiving Decapeptyl 3 monthly which is helping a bit, especially with the bleeding. About the diet. I am a qualified clinical nutritionist and this is not how it works. Something that triggers your symptoms might not causing any symptoms for someone else. It takes time to find the trigger foods. I am for example perfectly fine with gluten! I have a professional account on IG; plate_coach I wrote about FODmap diet. That can help you to find the trigger foods. You can also contact me if you have questions x

Cockapoo-2016 profile image
Cockapoo-2016 in reply to Narcica

Thank you so much for your help, very much appreciated 😊.

BloomingMarvellous profile image
BloomingMarvellous

Hi , Pill wasn’t the answer for me. Re diet and that dance have a look at a good info resource so it can be contextual to an overall plan rather than on its own. It’s only part ( possibly) of a story. @heal-endo Instagram is rammed with information and good basis for reviewing what might work health wise. Healing the gut to reduce the inflammation is key. Not everyone is gluten sensitive for others it’s milk or eggs or another …

EmB18 profile image
EmB18

Hi, personally I never got on that well with hormone treatments as I always got some side effect. I found diet made a big difference to helping to manage my symptoms. For me taking out wheat, sugar, alcohol and caffeine really helped, but we are all different and respond to different things so it can be a bit of trial and error to find out what works for you.

sakura22 profile image
sakura22

I went on Cerelle and it took about 3 months for my symptoms to subside. I am now virtually symptom free. I came off Cerelle at the doctor's request (I am 54) and all my pain and flooding came back. I am now back on Cerrelle, but the doctor wants me to come off it on my 55th birthday. If I am still having problems they want me to have a hysterectomy. I would prefer to go back on Cerelle if I haven't reached menopause (still no signs of it, as far as I can tell.)

Cockapoo-2016 profile image
Cockapoo-2016

Thank you for taking the time to reply back.

KylieP profile image
KylieP

The low dose combined pill & dietary changes works for me. Mercilon is the one I take. Was initially on Marvilon but srated having troubles so switched. All symptoms under control now. I have deep infiltrating endometriosis. My specialist supports me continuing despite my raising age. I have to consider the implications of switching and it not working.

Cockapoo-2016 profile image
Cockapoo-2016

Thank you for sharing your experience 😊.

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