What to do: So I eventually got my 3 month... - Endometriosis UK

Endometriosis UK

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What to do

BattyForBats profile image
9 Replies

So I eventually got my 3 month review (had my lap on 1st July) by phone. It was a grand total of 5 mins where I was told that I could either stay on the mini pill or I could have a hysterectomy it all depends on what I wanted my quality of life to be like. He didn't want an answer there and then but would keep me on the list for a year. I've got some endo left on my bowel so is it worth getting a hysterectomy if there is still some endo left on my bowel that will continue to grow?? At the beginning before I had my diagnosis I told the docs to just take it all out of me, so I kinda wanna have it done but am afraid that it won't completely solve the endo

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BattyForBats profile image
BattyForBats
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9 Replies
Jenn2022 profile image
Jenn2022

If the endo is on the bowel a hysterectomy won't help. Did he explain why he thought you should have one?

BattyForBats profile image
BattyForBats in reply toJenn2022

That's what I thought. He jyst said it's about the quality of life I want

Jenn2022 profile image
Jenn2022 in reply toBattyForBats

He doesn't seem to know what he's talking about...

Lindle profile image
Lindle

Were you advised this by a specialist endo centre?

BattyForBats profile image
BattyForBats in reply toLindle

No hospital gynea department

Sham_R profile image
Sham_R in reply toBattyForBats

I would recommend seeing an Endo Specialist because gyne doctors never completely understand endometriosis.

BattyForBats profile image
BattyForBats in reply toSham_R

He didn't seem very interested in what I was saying on the call

Lindle profile image
Lindle in reply toBattyForBats

Gosh, as soon as endo was found affecting your bowel they should have referred you straight to a specialist endo centre. The pill can sometimes ease pain by stopping periods but it isn't a 'treatment' for bowel endo and neither is a hysterectomy as endo is outside the uterus. This is a very outdated approach and not in accordance with official guidance. Are you in England?

BattyForBats profile image
BattyForBats in reply toLindle

Thank you. Think I'm gonna have to push to see a specialist

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